Adolfsson Eva Thors, Starrin Bengt, Smide Bibbi, Wikblad Karin
Department of Medical Sciences, Faculty of Medicine, Uppsala University, Uppsala, Sweden.
Int J Nurs Stud. 2008 Jul;45(7):986-94. doi: 10.1016/j.ijnurstu.2007.07.007. Epub 2007 Sep 5.
The aim of the current study was to explore patients' experiences of participating in an empowerment group education programme or receiving individual counselling.
In total, 28 patients from seven primary care centres were interviewed. Of these, 14 had received individual counselling and the remaining 14 had also participated in 4-5 empowerment group sessions. The semi-structured interviews were tape-recorded, transcribed verbatim and analysed using qualitative content analysis.
Three main categories crystallized from the interviews: (I) relationships, (II) learning and (III) controlling the disease. The relationships in the individual counselling seemed vertical, characterized by one-way communication with care providers acting as superiors and patients as subordinates. The relationships in the empowerment group appeared to be horizontal, characterized by trust and mutual communication. Those who had received individual counselling talked about learning by compliance--care providers acted as superiors, giving advice they expected the patients to follow. In the empowerment groups the patients talked more about participatory learning, whereby the facilitators and patients shared their knowledge and experiences. Controlling the disease could be labelled external in individual counselling, which made it difficult for patients to take responsibility for and control of their diabetes self-care. On the contrary, the patients in the empowerment group achieved the insight that diabetes is a serious disease but can be influenced, which contributed to their experience of self-control.
The current study indicates that vertical relationships, learning by compliance and external control seem to limit patients' ability to take responsibility for their disease, while horizontal relationships, participatory learning and self-control may contribute to strengthening patients' ability to influence and be actively involved in their own care.
本研究旨在探讨患者参与赋权小组教育计划或接受个体咨询的体验。
共采访了来自7个初级保健中心的28名患者。其中,14名接受了个体咨询,其余14名还参加了4 - 5次赋权小组会议。半结构化访谈进行了录音,逐字转录,并采用定性内容分析法进行分析。
访谈中形成了三个主要类别:(I)关系,(II)学习,(III)疾病控制。个体咨询中的关系似乎是垂直的,其特点是与作为上级的护理提供者和作为下属的患者进行单向沟通。赋权小组中的关系似乎是水平的,其特点是信任和相互沟通。接受个体咨询的人谈到通过依从性学习——护理提供者作为上级给出他们期望患者遵循的建议。在赋权小组中,患者更多地谈到参与式学习,即促进者和患者分享他们的知识和经验。在个体咨询中,疾病控制可以说是外部的,这使得患者难以对自己的糖尿病自我护理负责和控制。相反,赋权小组中的患者认识到糖尿病是一种严重的疾病,但可以受到影响,这有助于他们的自我控制体验。
本研究表明,垂直关系、依从性学习和外部控制似乎限制了患者对自身疾病负责的能力,而水平关系、参与式学习和自我控制可能有助于增强患者影响并积极参与自身护理的能力。