Milliat-Guittard Laure, Charlois Anne-Laure, Letrilliart Laurent, Favrel Véronique, Galand-Desme Sophie, Schott Anne-Marie, Berthoux Nicole, Chapet Olivier, Mere Pascale, Colin Cyrille
Hospices Civils de Lyon, Pôle Information Médicale Evaluation Recherche, Lyon, F-69424, France.
Gynecol Oncol. 2007 Dec;107(3):474-81. doi: 10.1016/j.ygyno.2007.08.001. Epub 2007 Sep 6.
Allowing cancer patients to hold medical records containing essential information for managing their disease may improve their satisfaction and the coordination of their medical care.
Our aim was to determine breast cancer patients' interest in and expectations of such medical records and the exchange of information during their treatment.
Eighty-six hospital physicians were selected to distribute an anonymous questionnaire to all of the breast cancer patients they saw in consultations.
Out of 194 patients asked, 140 (72%) participated in the survey. Forty-eight percent were "highly satisfied", 47% were "quite satisfied" with their involvement in their treatment and 43% preferred to play a relatively passive role in decisions concerning treatments. When offered, 79% agreed to hold paper medical records containing test results, reports and letters. Many found these medical records to be useful and a possible means for improving communication. Others, however, expressed reservations concerning privacy or losing or forgetting the records.
The principle of shared medical records could satisfy the majority of breast cancer patients. Experimenting with this concept in the field would enable practitioners to better determine the content of the records and how they can be used on a practical basis.
让癌症患者持有包含管理其疾病关键信息的病历，可能会提高他们的满意度以及医疗护理的协调性。
我们的目的是确定乳腺癌患者对此类病历的兴趣和期望，以及在治疗期间的信息交流情况。
挑选86名医院医生，让他们向所有在会诊中见到的乳腺癌患者发放一份匿名问卷。
在194名被询问的患者中，140名（72%）参与了调查。48%的患者“非常满意”，47%的患者对参与自身治疗“比较满意”，43%的患者在治疗决策方面倾向于扮演相对被动的角色。当提供包含检查结果、报告和信件的纸质病历时，79%的患者同意持有。许多患者认为这些病历有用，是改善沟通的一种可能方式。然而，其他人对隐私问题、丢失或遗忘病历表示担忧。
共享病历的原则可能会使大多数乳腺癌患者满意。在该领域对这一概念进行试验将使从业者能够更好地确定病历内容以及如何在实际中使用这些病历。
