Nelson M, Mendoza N, McGough N
Department of Nutrition and Dietetics, Kings College London, London, UK.
J Hum Nutr Diet. 2007 Oct;20(5):403-11. doi: 10.1111/j.1365-277X.2007.00813.x.
Management guidelines for care of coeliac patients published by the British Society of Gastroenterology (BSG), 2002 recommend that patients should see a dietitian at diagnosis and at least at annual review. In the absence of information on dietetic provision in coeliac disease management in the UK and with surveys in other countries suggesting that patients with coeliac disease gain most information from coeliac support groups (Green et al., 2001), Coeliac UK set out to investigate dietetic services for coeliac patients in the UK.
Questionnaires were sent to dietetic departments in the UK via the Regional Managers Group of the British Dietetic Association (BDA) by email. The questionnaires were in two parts, the first was completed by the dietetic manager and the second by the dietitian with the main responsibility for the management of coeliac patients within the department.
Over one-quarter of departments reported allocating a maximum of 1 h of dietitians' time per month per 100,000 population to seeing coeliac patients. More hours were allocated to coeliac patients in departments where dietitians had attended coeliac disease training, where dietitians were professional members of Coeliac UK or where coeliac patient care was undertaken by a multi-disciplinary team.
There is wide variation in dietetic provision for diagnosed coeliac patients in the UK. The Coeliac UK survey suggests that the current level of dietetic provision is in the region of one-third of what is required according to the BSG management guidelines (British Society of Gastroenterology (BSG), 2002) to provide diagnosed coeliacs with only basic support and annual review.
英国胃肠病学会（BSG）2002年发布的乳糜泻患者护理管理指南建议，患者在确诊时以及至少每年复查时应就诊于营养师。由于缺乏英国乳糜泻疾病管理中饮食供应的相关信息，且其他国家的调查表明乳糜泻患者从乳糜泻支持小组获取的信息最多（格林等人，2001年），英国乳糜泻协会着手调查英国为乳糜泻患者提供的饮食服务。
通过电子邮件向英国饮食协会（BDA）区域经理小组将问卷发送至英国各饮食科室。问卷分为两部分，第一部分由饮食科室经理填写，第二部分由该科室中主要负责乳糜泻患者管理的营养师填写。
超过四分之一的科室报告称，每10万人口每月为诊治乳糜泻患者分配给营养师的时间最多为1小时。在营养师参加过乳糜泻疾病培训的科室、营养师是英国乳糜泻协会专业会员的科室或由多学科团队负责乳糜泻患者护理的科室，分配给乳糜泻患者的时间更多。
英国为已确诊的乳糜泻患者提供的饮食服务差异很大。英国乳糜泻协会的调查表明，根据BSG管理指南（英国胃肠病学会（BSG），2002年），目前的饮食服务水平仅为为已确诊的乳糜泻患者提供基本支持和年度复查所需水平的三分之一左右。
