Wiederholt Peggy A, Connor Nadine P, Hartig Gregory K, Harari Paul M
University of Wisconsin Paul P. Carbone Comprehensive Cancer Center, University of Wisconsin Hospital and Clinics, Madison, WI 53792, USA.
Int J Radiat Oncol Biol Phys. 2007;69(2 Suppl):S88-91. doi: 10.1016/j.ijrobp.2007.03.066.
Patients with advanced head and neck cancer face not only a life-threatening malignancy, but also a remarkably complex treatment regimen that can affect their cosmetic appearance and ability to speak, breathe, and swallow. These patients benefit from the coordinated interaction of a multidisciplinary team of specialists and a comprehensive plan of care to address their physical and psychosocial concerns, manage treatment-related toxicities, and prevent or limit long-term morbidities affecting health-related quality of life. Although little has been published on patient-provider communication with a multidisciplinary team, evidence has suggested that gaps often occur in communication between patients and providers, as well as between specialists. These communication gaps can hinder the multidisciplinary group from working toward common patient-centered goals in a coordinated "interdisciplinary" manner. We discuss the role of a head-and-neck oncology nurse coordinator at a single institution in bridging gaps across the continuum of care, promoting an interdisciplinary team approach, and enhancing the overall quality of patient-centered head-and-neck cancer care.
晚期头颈癌患者不仅面临危及生命的恶性肿瘤,还面临极为复杂的治疗方案,这可能会影响他们的容貌以及说话、呼吸和吞咽能力。这些患者受益于多学科专家团队的协同互动以及全面的护理计划,以解决他们的身体和心理社会问题,管理与治疗相关的毒性反应,并预防或限制影响健康相关生活质量的长期疾病。尽管关于患者与多学科团队之间沟通的文献很少,但有证据表明,患者与医疗服务提供者之间以及专家之间的沟通往往存在差距。这些沟通差距可能会阻碍多学科团队以协调的“跨学科”方式朝着以患者为中心的共同目标努力。我们讨论了一家机构的头颈肿瘤护理协调员在弥合整个护理过程中的差距、促进跨学科团队方法以及提高以患者为中心的头颈癌护理整体质量方面的作用。