Jäghult Susanna, Larson Jenny, Wredling Regina, Kapraali Marjo
Karolinska Institutet, Department of Clinical Sciences, Danderyd University Hospital, Stockholm, Sweden.
Scand J Gastroenterol. 2007 Dec;42(12):1452-9. doi: 10.1080/00365520701439685.
Health-related quality of life is impaired in patients with inflammatory bowel disease and improved disease-related information can improve this situation. The aims of this study were to create an education programme that could be readily applicable at the clinic and would be suitable for newly diagnosed patients with inflammatory bowel disease, and to investigate whether the programme could improve their health-related quality of life.
Ninety-three patients with inflammatory bowel disease in remission were included and randomized to an intervention group or a control group. The intervention group attended a multiprofessional education programme while the control group received regular information. Four questionnaires were used for measuring health-related quality of life. Both groups completed the questionnaires at baseline and after 6 months. The intervention group also completed the questionnaires after 1 month.
No significant differences were found when comparing the two groups at 6 months. However, the multi-professional education programme was highly appreciated by the patients.
In the present study no improvement could be seen in health-related quality of life in patients with inflammatory bowel disease after participating in an education programme in comparison with the control group. This might be due to the fact that the questionnaires were not sensitive enough or that some patients were not in clinical remission. The patients' enthusiasm for the multiprofessional education programme has led to its being part of the regular care at the clinic.
炎症性肠病患者的健康相关生活质量受损,而改善疾病相关信息可改善这种状况。本研究的目的是创建一个可在诊所轻松应用且适合新诊断的炎症性肠病患者的教育项目,并调查该项目是否能改善他们的健康相关生活质量。
纳入93例缓解期炎症性肠病患者,随机分为干预组和对照组。干预组参加多专业教育项目,而对照组接受常规信息。使用四份问卷来测量健康相关生活质量。两组在基线时和6个月后完成问卷。干预组在1个月后也完成了问卷。
6个月时比较两组未发现显著差异。然而,多专业教育项目受到患者的高度评价。
在本研究中,与对照组相比,炎症性肠病患者参加教育项目后健康相关生活质量未见改善。这可能是由于问卷不够敏感或一些患者未处于临床缓解状态。患者对多专业教育项目的热情已使其成为诊所常规护理的一部分。