Hunter Louis, Molitor Fred, Chafetz Ross S, Mulcahey Mary Jane, Vogel Lawrence C, Betz Randal R, McDonald Craig M
Shriners Hospitals for Children, Clinical Research Department, 3551 North Broad Street, Philadelphia, PA 19140, USA.
J Spinal Cord Med. 2007;30 Suppl 1(Suppl 1):S150-7. doi: 10.1080/10790268.2007.11754594.
BACKGROUND/OBJECTIVE: Children and adolescents who have sustained a spinal cord injury (SCI) are at risk of developing spine deformities and secondary complications that may affect their quality of life. The Shriners Pediatric Instrument for Neuromuscular Scoliosis (SPINS) is a condition-specific instrument that was developed to measure the health-related quality of life (HRQOL) of this patient population. A pilot study was conducted to revise the SPINS and assess comprehensibility.
Fourteen children with SCI (ages 6-16 y) from a pediatric hospital were administered either a child version (ages 10-18 y) or a parent version (ages 5-9 y) of the SPINS. Problematic items were identified based on participants' feedback or low statistical variance.
Ten of 14 (71.6%) respondents understood at least 90% of the items, and 13 out of 14 (92.9%) comprehended more than 80% of relevant items on the SPINS.
The SPINS has demonstrated comprehensibility. The next step is to measure the validity and reliability of the instrument. The SPINS shows promise as a means of assessing quality of life related to brace effectiveness in children with SCI and neuromuscular scoliosis who primarily use a wheelchair for mobility.
背景/目的：脊髓损伤（SCI）的儿童和青少年有发生脊柱畸形和继发性并发症的风险，这些可能会影响他们的生活质量。施赖纳斯小儿神经肌肉性脊柱侧弯测量仪（SPINS）是一种针对特定病症的测量仪，旨在测量该患者群体与健康相关的生活质量（HRQOL）。开展了一项试点研究来修订SPINS并评估其可理解性。
来自一家儿童医院的14名脊髓损伤儿童（6 - 16岁）接受了SPINS儿童版（10 - 18岁）或家长版（5 - 9岁）的测试。根据参与者的反馈或低统计方差确定有问题的项目。
14名受访者中有10名（71.6%）至少理解90%的项目，14名中有13名（92.9%）理解了SPINS上超过80%的相关项目。
SPINS已证明具有可理解性。下一步是测量该测量仪的有效性和可靠性。SPINS有望作为评估主要使用轮椅活动的脊髓损伤和神经肌肉性脊柱侧弯儿童与支具效果相关的生活质量的一种手段。
