Simmons Leigh Ann
Department of Family Studies, University of Kentucky, 320 Funkhouser Building, Lexington, KY 40506-0054, USA.
Cancer Nurs. 2007 Sep-Oct;30(5):405-11. doi: 10.1097/01.NCC.0000290816.37442.af.
Although caregiver burden has been studied extensively, cancer patients' self-perceived burden on caregivers has been an understudied phenomenon. The purpose of this cross-sectional study was to validate the Self-perceived Burden Scale, a 10-item self-report instrument designed to measure chronically ill patients' experience of burden. Participants were 106 cancer patients (site nonspecific) receiving active cancer treatments at a university cancer center. Factor analysis results indicated that a 9-item version of the scale consisted of a single factor and had good reliability (alpha = .938). Convergent validity was demonstrated with global quality of life (r = -0.546, P < .001), physical well-being (r = -0.547, P < .001), emotional well-being (r = -0.549, P < .001), functional well-being (r = -0.404, P < .001), financial satisfaction (r = -0.284, P = .001), and depression (r = 0.414, P <.001). Tests of divergent validity indicated that the Self-perceived Burden Scale was independent of age, number of people living in the household, disease site, cancer treatment, and sociofamilial well-being. Findings indicate that the Self-perceived Burden Scale may be a useful instrument to assess patients' perceptions of burden on their caregivers. Further studies of the role of patient burden in psychosocial well-being and global quality of life, including validation of the Self-perceived Burden Scale on a larger study sample, are warranted.
尽管照顾者负担已得到广泛研究，但癌症患者对照顾者的自我感知负担却是一个研究不足的现象。这项横断面研究的目的是验证自我感知负担量表，这是一种由10个项目组成的自我报告工具，旨在测量慢性病患者的负担体验。研究参与者为106名在大学癌症中心接受积极癌症治疗的癌症患者（不限癌症部位）。因子分析结果表明，该量表的9项版本由单一因子组成，具有良好的信度（α = 0.938）。该量表与总体生活质量（r = -0.546，P < 0.001）、身体幸福感（r = -0.547，P < 0.001）、情绪幸福感（r = -0.549，P < 0.001）、功能幸福感（r = -0.404，P < 0.001）、财务满意度（r = -0.284，P = 0.001）和抑郁（r = 0.414，P < 0.001）之间均显示出收敛效度。区分效度测试表明，自我感知负担量表独立于年龄、家庭居住人数、疾病部位、癌症治疗以及社会家庭幸福感。研究结果表明，自我感知负担量表可能是评估患者对照顾者负担感知的有用工具。有必要进一步研究患者负担在心理社会幸福感和总体生活质量中的作用，包括在更大的研究样本上验证自我感知负担量表。
