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亨廷顿舞蹈症对家庭生活的影响。

The impact of Huntington's disease on family life.

作者信息

Vamos Marina, Hambridge John, Edwards Matt, Conaghan John

机构信息

Centre for Mental Health Studies, Faculty of Health, University of Newcastle, James Fletcher Hospital, Watt St., Newcastle 2300, Australia.

出版信息

Psychosomatics. 2007 Sep-Oct;48(5):400-4. doi: 10.1176/appi.psy.48.5.400.

Abstract

By assessing a group of adults who grew up in a household with a parent affected by Huntington's disease (HD), the authors explored the hypothesis that HD causes major disruption in family life. High rates of family dysfunction were reported. Adverse parenting in the form of parental and maternal overcontrol and paternal abuse were endorsed for both the HD-positive and HD-negative parent. These results illustrate the impact on all members of a family coping with HD. They are particularly stark, given the overall psychological health of the sample, and suggest that there is an urgent need to use a family perspective when assessing the need for psychosocial intervention in HD.

摘要

通过评估一组在有患亨廷顿舞蹈症(HD)的父母的家庭中长大的成年人,作者探讨了HD会导致家庭生活严重混乱这一假设。研究报告了较高的家庭功能障碍发生率。HD阳性和HD阴性的父母都认可父母过度控制和父亲虐待等不良养育方式。这些结果说明了HD对整个家庭所有成员的影响。鉴于样本的整体心理健康状况,这些影响尤为明显,并表明在评估HD患者心理社会干预需求时,迫切需要从家庭角度出发。

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