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沮丧与困惑:美国公众对其癌症相关信息寻求经历的评价

Frustrated and confused: the American public rates its cancer-related information-seeking experiences.

作者信息

Arora Neeraj K, Hesse Bradford W, Rimer Barbara K, Viswanath K, Clayman Marla L, Croyle Robert T

机构信息

Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD 20892-7344, USA.

出版信息

J Gen Intern Med. 2008 Mar;23(3):223-8. doi: 10.1007/s11606-007-0406-y. Epub 2007 Oct 6.

DOI:10.1007/s11606-007-0406-y
PMID:17922166
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2359461/
Abstract

BACKGROUND

Ensuring access to high-quality cancer-related information is important for the success of cancer prevention and control efforts.

OBJECTIVE

We conducted a population-based assessment of the barriers faced by people searching for cancer information.

DESIGN

Cross-sectional data from the National Cancer Institute's 2003 Health Information National Trends Survey.

PARTICIPANTS

A nationally representative sample of individuals in the USA (n = 6,369).

MEASUREMENTS

We assessed whether respondents had ever sought cancer-related information and examined ratings of their information-seeking experiences and beliefs regarding causes of cancer and its prevention. Linear and logistic regression models were estimated to determine predictors of negative experiences and associations between experiences and cancer beliefs.

RESULTS

Nearly one half (44.9%) of Americans had searched for cancer information. Many reported negative experiences, including the search process requiring a lot of effort (47.7%), expressing frustration (41.3%), and concerns about the quality of the information found (57.7%). Respondents lacking health insurance or a high school education experienced the greatest difficulty. Compared to those reporting the most positive experiences, information seekers reporting more negative experiences were more likely to report that almost everything caused cancer [odds ratio (OR) 2.0, 95% confidence interval (CI) 1.5-2.6], that not much can be done to prevent cancer (OR 2.7, 95% CI 1.9-3.8), and that it is hard to know which cancer prevention recommendations to follow (OR 3.2, 95% CI 2.3-4.5).

CONCLUSIONS

While a significant proportion of the American public searches for cancer information, suboptimal experiences are common. Facilitation of information seeking will be critical for promoting informed decision making in cancer prevention and control.

摘要

背景

确保获取高质量的癌症相关信息对于癌症预防与控制工作的成功至关重要。

目的

我们对寻求癌症信息的人群所面临的障碍进行了基于人群的评估。

设计

来自美国国家癌症研究所2003年健康信息全国趋势调查的横断面数据。

参与者

美国具有全国代表性的个体样本(n = 6369)。

测量

我们评估了受访者是否曾寻求过癌症相关信息,并检查了他们对信息寻求经历的评价以及对癌症病因及其预防的看法。估计了线性和逻辑回归模型,以确定负面经历的预测因素以及经历与癌症信念之间的关联。

结果

近一半(44.9%)的美国人搜索过癌症信息。许多人报告了负面经历,包括搜索过程需要付出很多努力(47.7%)、感到沮丧(41.3%)以及对所获信息的质量表示担忧(57.7%)。缺乏医疗保险或高中教育的受访者遇到的困难最大。与报告最积极经历的人相比,报告更多负面经历的信息寻求者更有可能报告几乎所有事物都能致癌[比值比(OR)2.0,95%置信区间(CI)1.5 - 2.6],认为预防癌症能做的不多(OR 2.7,95%CI 1.9 - 3.8),并且很难知道该遵循哪些癌症预防建议(OR 3.2,95%CI 2.3 - 4.5)。

结论

虽然很大一部分美国公众搜索癌症信息,但不理想的经历很常见。促进信息寻求对于在癌症预防与控制中推动明智决策至关重要。

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J Health Commun. 2006;11 Suppl 1:1-17. doi: 10.1080/10810730600637426.
2
Cancer patients' information needs across the cancer care continuum: evidence from the cancer information service.癌症患者在整个癌症护理连续过程中的信息需求:来自癌症信息服务的证据。
J Health Commun. 2005;10 Suppl 1:15-34. doi: 10.1080/10810730500263620.
3
Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey.健康信息的信任与来源:互联网的影响及其对医疗保健提供者的启示:首次健康信息国家趋势调查结果
Arch Intern Med. 2005;165(22):2618-24. doi: 10.1001/archinte.165.22.2618.
4
Science and society: the communications revolution and cancer control.科学与社会:通信革命与癌症防治
Nat Rev Cancer. 2005 Oct;5(10):828-35. doi: 10.1038/nrc1718.
5
Patients' perceptions of quality of care for colorectal cancer by race, ethnicity, and language.患者按种族、民族和语言对结直肠癌护理质量的认知。
J Clin Oncol. 2005 Sep 20;23(27):6576-86. doi: 10.1200/JCO.2005.06.102. Epub 2005 Aug 22.
6
Promoting informed choice: transforming health care to dispense knowledge for decision making.促进明智选择:转变医疗保健模式以提供决策所需知识。
Ann Intern Med. 2005 Aug 16;143(4):293-300. doi: 10.7326/0003-4819-143-4-200508160-00010.
7
Not all patients want to participate in decision making. A national study of public preferences.并非所有患者都希望参与决策制定。一项关于公众偏好的全国性研究。
J Gen Intern Med. 2005 Jun;20(6):531-5. doi: 10.1111/j.1525-1497.2005.04101.x.
8
Information needs and sources of information among cancer patients: a systematic review of research (1980-2003).癌症患者的信息需求与信息来源:一项研究的系统综述(1980 - 2003年)
Patient Educ Couns. 2005 Jun;57(3):250-61. doi: 10.1016/j.pec.2004.06.006.
9
The Health Information National Trends Survey (HINTS): development, design, and dissemination.健康信息国家趋势调查(HINTS):发展、设计与传播
J Health Commun. 2004 Sep-Oct;9(5):443-60; discussion 81-4. doi: 10.1080/10810730490504233.
10
Consequences of declining survey response rates for smoking prevalence estimates.吸烟流行率估计调查答复率下降的后果。
Am J Prev Med. 2004 Oct;27(3):254-7. doi: 10.1016/j.amepre.2004.05.006.