Murray Ashley B, Trivedi Neha, Jensen Roxanne E, Willis Gordon, Moser Richard P, Blake Kelly D
Behavioral Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, Rockville, Maryland, USA.
Public Health Department, NORC at the University of Chicago, Bethesda, MD, USA.
J Health Commun. 2025;30(1-3):51-59. doi: 10.1080/10810730.2025.2449972. Epub 2025 Jan 10.
Searching for health information is critical for maintaining one's health and reducing risk of disease, including cancer. However, some people are more likely to experience challenges in finding and comprehending health information; therefore, it is important to measure health information-seeking behavior. In order to add to prior research conducted with the scale, this study provides the first formal evaluation of the validity and reliability of the four-item, cancer-focused Information Seeking Experience (ISEE) scale in a cross-sectional, nationally representative health survey of U.S. adults.
Results indicated that the four ISEE scale items were within limits of normality (skew range = -.44-.11; kurtosis range = -1.07 - -.71), exhibited medium to strong pairwise correlations ('s = .54-.72), and indicated a strong internal consistency (Cronbach's α = .85). The scale was unidimensional (CFI = .997, TLI = .992, SRMR = .012), and the scale demonstrated construct validity with known sociodemographic characteristics. As predicted, the ISEE scale had relatively weak relationships with the Patient Health Questionnaire for Depression and Anxiety, Patient-Centered Communication Scale, and the Patient-Reported Outcomes Measurement Information System (PROMIS) Instrumental Support 4a, demonstrating discriminant validity.
Tracking information-seeking experience in the population is critical, especially to inform efforts that ensure individuals have accessible, understandable, and reliable information about cancer. The ISEE scale was found to assess various aspects of cancer information-seeking in a reliable and valid manner and may be used in future surveys to track information support needs of those who seek health and cancer information.
搜索健康信息对于维持个人健康和降低包括癌症在内的疾病风险至关重要。然而，有些人在查找和理解健康信息方面更容易遇到困难；因此，衡量健康信息寻求行为很重要。为了补充之前使用该量表进行的研究，本研究在美国成年人的一项具有全国代表性的横断面健康调查中，首次对四项以癌症为重点的信息寻求体验（ISEE）量表的有效性和可靠性进行了正式评估。
结果表明，ISEE量表的四个项目在正态分布范围内（偏度范围为-0.44至0.11；峰度范围为-1.07至-0.71），呈现出中等至强的成对相关性（相关系数为0.54至0.72），并显示出很强的内部一致性（克朗巴哈α系数为0.85）。该量表是单维的（CFI = 0.997，TLI = 0.992，SRMR = 0.012），并且该量表在已知的社会人口学特征方面显示出结构效度。正如预期的那样，ISEE量表与抑郁和焦虑患者健康问卷、以患者为中心的沟通量表以及患者报告结果测量信息系统（PROMIS）工具性支持4a的关系相对较弱，显示出区分效度。
追踪人群中的信息寻求体验至关重要，特别是为确保个人能够获得关于癌症的可获取、可理解和可靠信息的努力提供信息。研究发现，ISEE量表能够以可靠且有效的方式评估癌症信息寻求的各个方面，并可用于未来的调查，以追踪那些寻求健康和癌症信息者的信息支持需求。
