Rutten Lila J Finney, Arora Neeraj K, Bakos Alexis D, Aziz Noreen, Rowland Julia
Division of Cancer Prevention, National Cancer Institute, 6130 Executive Blvd., EPN 4051A, MSC 7365, Bethesda, MD 20892, USA.
Patient Educ Couns. 2005 Jun;57(3):250-61. doi: 10.1016/j.pec.2004.06.006.
Understanding what cancer patients need to know and from whom they receive information during the course of care is essential to ensuring quality care. We reviewed 112 articles published from 1980 to 2003 and developed a typology summarizing cancer patients' information needs and the sources from which they receive information. The majority of articles focused on information needs and sources during the diagnosis and treatment phase. Thus, the most frequent information need was treatment-related (38.1%). The most frequent information source was health professionals (27.3%). We examined patients' information needs and sources along the continuum of care and found that during diagnosis and treatment, information needs about the stage of disease, treatment options, and side-effects of treatment were prominent; during post-treatment, patients continued to need information about treatment, and information about recovery was also important. Future research should examine cancer patients' information needs and sources throughout their cancer journey.
了解癌症患者在治疗过程中需要知道什么以及他们从谁那里获得信息对于确保高质量护理至关重要。我们回顾了1980年至2003年发表的112篇文章，并制定了一种类型学，总结了癌症患者的信息需求以及他们获取信息的来源。大多数文章关注诊断和治疗阶段的信息需求和来源。因此，最常见的信息需求是与治疗相关的（38.1%）。最常见的信息来源是医疗专业人员（27.3%）。我们在整个护理过程中研究了患者的信息需求和来源，发现在诊断和治疗期间，关于疾病阶段、治疗选择和治疗副作用的信息需求最为突出；在治疗后，患者仍然需要关于治疗的信息，关于康复的信息也很重要。未来的研究应该在癌症患者的整个抗癌过程中研究他们的信息需求和来源。
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