Fasching P A, Nicolaisen-Murmann K, Lux M P, Bender H G, Ackermann S, Beckmann M W, Bani M R
Department of Gynecology and Obstetrics, University of Erlangen, Erlangen, Germany.
Eur J Cancer Care (Engl). 2007 Nov;16(6):508-16. doi: 10.1111/j.1365-2354.2007.00784.x.
Quality of life (QOL) is commonly assessed using health-related questionnaires. The Socio-Economic Satisfaction Quality of Life (SES-QOL) questionnaire includes specific individual coping topics, such as health, leisure activities, sexual life, occupation, financial situation, partnership situation, family situation, accommodation situation and friendship situation. This paper reports the findings of the survey with the SES-QOL with an emphasis on changes in satisfaction during the course of a disease involving a gynaecological or breast malignancy. From February 2000 to October 2002, 1030 women diagnosed with breast or gynaecological cancers were included in this study. The patients responded to the SES-QOL questionnaire as part of an interview. Metastatic disease results in more frequent reporting of dissatisfaction with health issues (63%), sexual life (24.5%) and occupation (20%), whereas patients in the adjuvant setting report deteriorating satisfaction with regard to health (41.7%), sexual life (12.2%) and occupation (11.5%). The SES-QOL reflects individual changes in different aspects of satisfaction during the course of a cancer disease. Identifying as many causing variables as possible, and offering support through an interdisciplinary approach including the physician, a social worker and a psycho-oncologist, appears necessary in order to help patients cope with cancer as a dynamic and individual process.
生活质量(QOL)通常使用与健康相关的问卷进行评估。社会经济生活质量满意度(SES-QOL)问卷包括特定的个人应对主题,如健康、休闲活动、性生活、职业、财务状况、伴侣关系、家庭状况、居住状况和友谊状况。本文报告了使用SES-QOL进行调查的结果,重点关注涉及妇科或乳腺癌的疾病过程中满意度的变化。从2000年2月到2002年10月,1030名被诊断患有乳腺癌或妇科癌症的女性被纳入本研究。患者作为访谈的一部分对SES-QOL问卷做出回应。转移性疾病导致对健康问题(63%)、性生活(24.5%)和职业(20%)不满的报告更为频繁,而处于辅助治疗阶段的患者报告在健康(41.7%)、性生活(12.2%)和职业(11.5%)方面的满意度下降。SES-QOL反映了癌症疾病过程中不同方面满意度的个体变化。为了帮助患者应对癌症这一动态的个体化过程,识别尽可能多的影响变量,并通过包括医生、社会工作者和心理肿瘤学家在内的跨学科方法提供支持似乎是必要的。