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癌症面前的亲密关系与性问题:患者视角

Issues of intimacy and sexuality in the face of cancer: the patient perspective.

作者信息

Hordern Amanda, Street Annette

机构信息

La Trobe University, Heidelberg, Victoria, Australia.

出版信息

Cancer Nurs. 2007 Nov-Dec;30(6):E11-8. doi: 10.1097/01.NCC.0000300162.13639.f5.

Abstract

Experiencing a diagnosis of cancer has the potential to dramatically alter the way in which a person experiences intimate and sexual aspects of their lives. This article draws on data from a larger study into issues of intimacy and sexuality from the perspectives of patients and health professionals in cancer and palliative care. A 3-stage reflexive inquiry involved semistructured participant interviews (n = 82), textual analysis of national and international clinical practice guidelines (n = 33), and participant feedback at 15 patient and health professional educational forums. This article will present the analysis of 50 patient interviews, which showed 5 clusters of responses to a cancer diagnosis: "focus on survival," "trust in health professional," "desire for choices," "search for normality," and "need for negotiated communication." Most patients were searching for a reflexive, patient-centered and negotiated style of communication from the health professional of their choice, at a time and in a manner that suited their individual needs. Many patients were disappointed by the lack of information, support, and practical strategies provided by health professionals to assist them to live with the sexual and intimate changes they had experienced in the face of a life-limiting disease. Implications for nursing practice are discussed.

摘要

被诊断患有癌症有可能极大地改变一个人对其生活中亲密和性方面的体验方式。本文借鉴了一项更大规模研究的数据,该研究从癌症和姑息治疗患者及医护人员的角度探讨亲密关系和性行为问题。一项三阶段的反思性探究包括半结构化的参与者访谈(n = 82)、对国家和国际临床实践指南的文本分析(n = 33)以及在15个患者和医护人员教育论坛上的参与者反馈。本文将呈现对50例患者访谈的分析结果,这些结果显示了对癌症诊断的5类反应:“关注生存”、“信任医护人员”、“渴望选择”、“寻求正常状态”以及“需要协商沟通”。大多数患者希望从他们选择的医护人员那里获得一种反思性的、以患者为中心且经过协商的沟通方式,且时间和方式要符合他们的个人需求。许多患者对医护人员缺乏信息、支持及实用策略感到失望,这些本可帮助他们应对面对危及生命疾病时所经历的性和亲密关系变化。文中还讨论了对护理实践的启示。

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