Reichman Nancy E, Corman Hope, Noonan Kelly
Department of Pediatrics, Robert Wood Johnson Medical School, 97 Paterson St, New Brunswick, NJ 08903, USA.
Matern Child Health J. 2008 Nov;12(6):679-83. doi: 10.1007/s10995-007-0307-z. Epub 2007 Dec 1.
Families with disabled children represent a sizeable share of all American households. Living with a disabled child can have profound effects on the entire family, which in turn can affect the health and well-being of the child who is disabled. Much needs to be learned about how children's health affects their parents, siblings, and other family members and about how family characteristics and resources modify those associations. Numerous programs and organizations provide resources for disabled children and their families, but the system is extremely fragmented and difficult to navigate. This commentary reviews what is known about the effects of child disability on the family, provides an overview of the complex needs of and multitude of resources available to families of disabled children, and concludes with suggested directions for practice, research, and public policy.
有残疾儿童的家庭在美国所有家庭中占相当大的比例。与残疾儿童一起生活会对整个家庭产生深远影响，进而可能影响残疾儿童的健康和幸福。关于儿童健康如何影响其父母、兄弟姐妹和其他家庭成员，以及家庭特征和资源如何改变这些关联，还有很多需要了解的地方。许多项目和组织为残疾儿童及其家庭提供资源，但该体系极其分散，难以操作。本评论回顾了关于儿童残疾对家庭影响的已知情况，概述了残疾儿童家庭的复杂需求和众多可用资源，并最后提出了实践、研究和公共政策方面的建议方向。
