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短时间休息规定对残疾儿童家庭的影响:国际文献回顾。

The impacts of short break provision on families with a disabled child: an international literature review.

机构信息

Centre for Disability Research, School of Health and Medicine, Lancaster University, UK.

出版信息

Health Soc Care Community. 2011 Jul;19(4):337-71. doi: 10.1111/j.1365-2524.2010.00977.x. Epub 2010 Dec 22.

DOI:10.1111/j.1365-2524.2010.00977.x
PMID:21175907
Abstract

There are widespread assumptions about the potential impacts of short breaks on family carers and disabled children. This review aims to evaluate the existing international research evidence concerning the impacts of short breaks on families with a disabled child. Electronic literature searches were conducted using ASSIA, PsycInfo, CINAHL, and Web of Science, and requests for information were sent to selected email lists. Of 60 articles or reports identified for inclusion in the review, the vast majority of studies were cross-sectional, with only eight studies using quasi-experimental pre-post designs or longitudinal designs. Nonetheless, the consistency with which some findings have been reported suggests that short breaks appear to have the potential to positively impact on not only the well-being of carers, but also the children receiving short breaks and their families as a whole. Additional research is warranted in a number of areas. First, research needs to consider the impact of short breaks on fathers. Second, there is a need to consider in more depth how short breaks can impact on the siblings of disabled children. Third, research could consider how best short breaks can be combined with other interventions to maximise the impact for disabled children and their families. Fourth, research needs to look at the longer term impact of short breaks on outcomes for disabled children and their families. What is needed is evidence on what type of short breaks are best for children and families with particular characteristics at particular times during the course of the child's maturation towards adulthood.

摘要

人们普遍认为,短暂休息对家庭照顾者和残疾儿童可能会产生影响。本综述旨在评估关于短期休息对残疾儿童家庭影响的现有国际研究证据。使用 ASSIA、PsycInfo、CINAHL 和 Web of Science 进行了电子文献检索,并向选定的电子邮件列表发送了信息请求。在确定纳入本综述的 60 篇文章或报告中,绝大多数研究都是横断面研究,只有 8 项研究使用了准实验前后设计或纵向设计。尽管如此,一些研究结果的一致性表明,短期休息似乎不仅有可能对照顾者的幸福感产生积极影响,而且有可能对接受短期休息的儿童及其整个家庭产生积极影响。在许多领域都需要进一步的研究。首先,研究需要考虑短期休息对父亲的影响。其次,需要更深入地考虑短期休息如何影响残疾儿童的兄弟姐妹。第三,研究可以考虑如何最好地将短期休息与其他干预措施相结合,以最大限度地提高残疾儿童及其家庭的效果。第四,研究需要关注短期休息对残疾儿童及其家庭结局的长期影响。需要的是关于在儿童向成年过渡过程中特定时间具有特定特征的儿童和家庭的最佳短期休息类型的证据。

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