Coulter M L, Scheuerle J, Laude M, Habal M B
Department of Community and Family Health, College of Public Health, University of South Florida, Tampa.
J Craniofac Surg. 1991 Apr;2(1):9-17.
Parents of 27 children with pure craniosynostosis seen at a craniofacial clinic were surveyed to measure variables associated with family psychological stress. Each parent was asked to complete the Questionnaire on Resources and Stress and to provide information on various family and demographic characteristics. The level of psychological stress was positively associated with the number of older children in the home, not having one's own car, and not having prior experience caring for a handicapped person. Having someone to help care for one's child was also positively associated with family stress level. The level of family stress was negatively associated with the respondent's current health and degree of satisfaction with the amount of time clinic staff spent with one's child. These findings suggest a means of identifying families at high risk for stress associated with having a child with a craniofacial disorder who may need supportive services.
对一家颅面诊所接诊的27名患有单纯性颅缝早闭症患儿的家长进行了调查，以衡量与家庭心理压力相关的变量。每位家长都被要求填写《资源与压力问卷》，并提供有关各种家庭和人口特征的信息。心理压力水平与家中大龄儿童的数量、没有自己的汽车以及没有照顾残疾人的先前经验呈正相关。有人帮忙照顾孩子也与家庭压力水平呈正相关。家庭压力水平与受访者目前的健康状况以及对诊所工作人员陪伴孩子时间的满意度呈负相关。这些发现提示了一种识别那些因孩子患有颅面疾病而面临高压力风险、可能需要支持性服务的家庭的方法。
