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苏克-萨姆-拜:泰国伊桑地区残疾中年女性的生活质量认知

Suk-Sam-Bai: the quality of life perceptions among middle-aged women living with a disability in Isaan, Thailand.

作者信息

Rukwong Pensri, Chirawatkul Siriporn, Markovic Milica

机构信息

Graduate School, Khon Kaen University, Thailand.

出版信息

J Nurs Res. 2007 Dec;15(4):285-95. doi: 10.1097/01.jnr.0000387625.48672.6a.

Abstract

Midlife represents a time of shifting roles and biopsychosociocultural change for women. Physical disabilities compound the effect of such on daily life and quality of life. The objective of this study was to explore how middle-aged women with disabilities in Isaan perceived their current quality of life. A qualitative method was applied. Data were collected using in-depth interviews and observations. Sixteen disabled women were recruited through purposive and theoretical sampling. Qualitative data were analyzed using both thematic and content analysis. Triangulation was used to ensure data rigor. "Suk-Sam-Bai" was a term frequently used by disabled women in this study to define their quality of life. Life experiences, goals, and achievements lead to experiences of gain, maintenance, and loss in three interrelated aspects that include: fluctuations in physical capacity and health, maintaining gender role, and a caring and supportive environment. These three aspects impact on an individual's personal perception of Suk-Sam-Bai. Study findings indicate that gender and culture play significant roles in the lives of disabled women in Isaan culture. Based on study findings, providing gender- cultural sensitive nursing care is essential to delivering comprehensive and effective healthcare to women with disabilities.

摘要

中年对女性来说是一个角色转变以及经历生物心理社会文化变化的时期。身体残疾会使这些变化对日常生活和生活质量产生的影响更为复杂。本研究的目的是探讨伊桑地区的中年残疾女性如何看待她们当前的生活质量。采用了定性研究方法。通过深度访谈和观察收集数据。通过立意抽样和理论抽样招募了16名残疾女性。使用主题分析和内容分析对定性数据进行分析。采用三角互证法以确保数据的严谨性。在本研究中,残疾女性经常使用“Suk-Sam-Bai”这个词来定义她们的生活质量。生活经历、目标和成就会在三个相互关联的方面带来收获、维持和失去的体验,这三个方面包括:身体能力和健康的波动、维持性别角色以及关爱和支持性的环境。这三个方面会影响个人对Suk-Sam-Bai的个人认知。研究结果表明,性别和文化在伊桑文化中残疾女性的生活中起着重要作用。基于研究结果,提供具有性别文化敏感性的护理对于为残疾女性提供全面有效的医疗保健至关重要。

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