Elliott John, Shneker Bassel
Department of Neurology, Ohio State University, Columbus, OH 43210, USA.
Epilepsy Behav. 2008 May;12(4):547-56. doi: 10.1016/j.yebeh.2007.11.008. Epub 2008 Jan 2.
The medical literature related to knowledge of, beliefs about, and attitudes toward epilepsy was reviewed from the perspective of patients, caregivers, and health care providers. The literature points to a desire for enhanced epilepsy education by patients and caregivers; however, these needs have not been met by primary or specialty care. Surveys of general practitioners (GPs) point to limitations in knowledge and negative attitudes. GPs view their role in epilepsy care as primarily educational and tend to acknowledge their limitations by referring difficult cases. Ongoing education for GPs is important, as is an improved partnership in defining roles for care and education. Health care professionals specialized in epilepsy care acknowledge their own set of barriers to optimal care. Epilepsy education programs have been able to improve knowledge; however, long-term improvements in behavioral outcomes or quality of life are less documented. Suggestions for improvements are provided.
从患者、护理人员和医疗保健提供者的角度，对与癫痫的知识、认知和态度相关的医学文献进行了综述。文献指出患者和护理人员渴望加强癫痫教育；然而，初级护理或专科护理并未满足这些需求。对全科医生（GP）的调查表明他们在知识方面存在局限性且态度消极。全科医生将他们在癫痫护理中的作用主要视为教育，并倾向于通过转诊疑难病例来承认自己的局限性。对全科医生进行持续教育很重要，在明确护理和教育角色方面改善合作关系也很重要。专门从事癫痫护理的医疗保健专业人员承认他们在提供最佳护理方面存在一系列障碍。癫痫教育项目能够提高知识水平；然而，关于行为结果或生活质量的长期改善的记录较少。文中提供了改进建议。
