From the Department of Neurology (F.J.S.J., J.R.S., N.A., S.S.C., D.B.H., L.M.V.R.M.), Massachusetts General Hospital, Harvard Medical School; Department of Neurology (S.T.H.), Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA; Department of Pediatrics (J.R.B.), Cumming School of Medicine, University of Calgary, Alberta, Canada; and Research and New Therapies (B.E.F.), Epilepsy Foundation, Landover, MD.
Neurology. 2020 Jul 14;95(2):e213-e223. doi: 10.1212/WNL.0000000000009778. Epub 2020 Jun 16.
To incorporate standardized documentation into an epilepsy clinic and to use these standardized data to compare patients' perception of epilepsy diagnosis to provider documentation.
Using quality improvement methodology, we implemented interventions to increase documentation of epilepsy diagnosis, seizure frequency, and type from 49.8% to 70% of adult nonemployee patients seen by 6 providers over 5 months of routine clinical care. The main intervention consisted of an interactive SmartPhrase that mirrored a documentation template developed by the Epilepsy Learning Healthcare System. We assessed the weekly proportion of complete SmartPhrases among eligible patient encounters with a statistical process control chart. We used a subset of patients with established epilepsy care linked to existing patient-reported survey data to examine the proportion of patient-to-provider agreement on epilepsy diagnosis (yes vs no/unsure). We also examined sociodemographic and clinical characteristics of patients who disagreed vs agreed with provider's documentation of epilepsy diagnosis.
The median SmartPhrase weekly completion rate was 78%. Established patients disagreed with providers with respect to epilepsy diagnosis in 18.5% of encounters (κ = 0.13), indicating that they did not have or were unsure if they had epilepsy despite having a provider-documented epilepsy diagnosis. Patients who disagreed with providers were similar to those who agreed with respect to age, sex, ethnicity, marital status, seizure frequency, type, and other quality-of-life measures.
This project supports the feasibility of implementing standardized documentation of data relevant to epilepsy care in a tertiary epilepsy clinic and highlights an opportunity for improvement in patient-provider communication.
将标准化文档纳入癫痫诊所,并利用这些标准化数据比较患者对癫痫诊断的认知与医生记录的差异。
我们采用质量改进方法,实施了干预措施,以提高 6 名医生在 5 个月的常规临床护理中对 49.8%的成年非雇员患者进行癫痫诊断、发作频率和类型记录的比例(从 49.8%提高至 70%)。主要干预措施是使用互动 SmartPhrase,其模仿了癫痫学习医疗保健系统开发的文档模板。我们使用具有既定癫痫护理的患者子集,并与现有的患者报告调查数据相关联,以检查患者与医生对癫痫诊断的一致性比例(是与否/不确定)。我们还研究了不同意与同意医生记录癫痫诊断的患者在社会人口统计学和临床特征方面的差异。
SmartPhrase 每周完成率中位数为 78%。在 18.5%的就诊中,已确诊患者不同意医生的癫痫诊断(κ=0.13),这表明他们没有癫痫,或者不确定是否患有癫痫,尽管医生记录了癫痫诊断。不同意医生诊断的患者与同意医生诊断的患者在年龄、性别、种族、婚姻状况、发作频率、类型和其他生活质量测量方面相似。
本项目支持在三级癫痫诊所实施与癫痫护理相关的标准化数据记录的可行性,并强调了改善医患沟通的机会。