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生活影像:唐氏综合征患儿的兄弟姐妹

Images of life: siblings of children with Down syndrome.

作者信息

Rampton Tammy B, Rosemann Jessica L, Latta Aimee L, Mandleco Barbara L, Olsen Susanne Roper, Dyches Tina T

机构信息

Brigham Young University, College of Nursing, Prove, UT 84602, USA.

出版信息

J Fam Nurs. 2007 Nov;13(4):420-42. doi: 10.1177/1074840707308580.

Abstract

This qualitative, descriptive study used photography to capture important symbols in the lives of 16 siblings living in families raising a child with Down syndrome (CWDS). Content analysis revealed two categories: people/nonpeople. The people category included family members and friends, whereas the non-people category included objects, animals, and buildings. Similarities/differences also were noted according to age and gender. Seven- to 9-year-olds took more snapshots of themselves and their parents than did the other age groups; the 10-to 12-year-olds and 13- to 15-year-olds took more photographs of the CWDS than did the younger age group. Female siblings took more snapshots of their typically developing brothers/sisters, family members in mixed groups, and people not in their family than did male siblings. Male siblings took more photographs of their parents and themselves. Results validate the importance of gathering qualitative data from children and confirm the use of photography as one of these methods.

摘要

这项定性描述性研究运用摄影来捕捉16名生活在抚养唐氏综合征患儿家庭中的兄弟姐妹生活中的重要象征。内容分析揭示了两个类别:人物/非人物。人物类别包括家庭成员和朋友,而非人物类别包括物品、动物和建筑。还根据年龄和性别记录了异同点。7至9岁的孩子比其他年龄组拍摄了更多自己和父母的快照;10至12岁以及13至15岁的孩子比年幼组拍摄了更多唐氏综合征患儿的照片。女性兄弟姐妹比男性兄弟姐妹拍摄了更多其发育正常的兄弟姐妹、混合群体中的家庭成员以及非家庭成员的快照。男性兄弟姐妹拍摄了更多自己和父母的照片。研究结果证实了从儿童那里收集定性数据的重要性,并确认了使用摄影作为这些方法之一的有效性。

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