Edwards Roger L, Edwards Sandra L, Bryner James, Cunningham Kelly, Rogers Amy, Slattery Martha L
Division of Epidemiology, Department of Internal Medicine, University of Utah, Salt Lake City, UT, United States.
Comput Methods Programs Biomed. 2008 Apr;90(1):38-55. doi: 10.1016/j.cmpb.2007.11.019. Epub 2008 Jan 18.
We describe a computer-assisted data collection system developed for a multicenter cohort study of American Indian and Alaska Native people. The study computer-assisted participant evaluation system or SCAPES is built around a central database server that controls a small private network with touch screen workstations. SCAPES encompasses the self-administered questionnaires, the keyboard-based stations for interviewer-administered questionnaires, a system for inputting medical measurements, and administrative tasks such as data exporting, backup and management. Elements of SCAPES hardware/network design, data storage, programming language, software choices, questionnaire programming including the programming of questionnaires administered using audio computer-assisted self-interviewing (ACASI), and participant identification/data security system are presented. Unique features of SCAPES are that data are promptly made available to participants in the form of health feedback; data can be quickly summarized for tribes for health monitoring and planning at the community level; and data are available to study investigators for analyses and scientific evaluation.
我们描述了一个为美国印第安人和阿拉斯加原住民的多中心队列研究开发的计算机辅助数据收集系统。该研究的计算机辅助参与者评估系统(SCAPES)围绕一个中央数据库服务器构建,该服务器控制着一个带有触摸屏工作站的小型专用网络。SCAPES包括自我管理问卷、用于访谈员管理问卷的基于键盘的工作站、一个用于输入医学测量数据的系统,以及诸如数据导出、备份和管理等管理任务。介绍了SCAPES硬件/网络设计、数据存储、编程语言、软件选择、问卷编程(包括使用音频计算机辅助自我访谈(ACASI)管理的问卷编程)以及参与者识别/数据安全系统的要素。SCAPES的独特之处在于,数据能以健康反馈的形式迅速提供给参与者;数据可以快速汇总给部落,用于社区层面的健康监测和规划;数据可供研究调查人员进行分析和科学评估。