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临终关怀:以患者为中心的沟通指南。

End-of-Life care: guidelines for patient-centered communication.

作者信息

Ngo-Metzger Quyen, August Kristin J, Srinivasan Malathi, Liao Solomon, Meyskens Frank L

机构信息

Division of General Internal Medicine and Primary Care, University of California, Irvine 92697-5800, USA.

出版信息

Am Fam Physician. 2008 Jan 15;77(2):167-74.

Abstract

When patients are diagnosed with cancer, primary care physicians often must deliver the bad news, discuss the prognosis, and make appropriate referrals. When delivering bad news, it is important to prioritize the key points that the patient should retain. Physicians should assess the patient's emotional state, readiness to engage in the discussion, and level of understanding about the condition. The discussion should be tailored according to these assessments. Often, multiple visits are needed. When discussing prognosis, physicians should be sensitive to variations in how much information patients want to know. The challenge for physicians is to communicate prognosis accurately without giving false hope. All physicians involved in the patient's care should coordinate their key prognosis points to avoid giving the patient mixed messages. As the disease progresses, physicians must reassess treatment effectiveness and discuss the values, goals, and preferences of the patient and family. It is important to initiate conversations about palliative care early in the disease course when the patient is still feeling well. There are innovative hospice programs that allow for simultaneous curative and palliative care. When physicians discuss the transition from curative to palliative care, they should avoid phrases that may convey to the patient a sense of failure or abandonment. Physicians also must be cognizant of how cultural factors may affect end-of-life discussions. Sensitivity to a patient's cultural and individual preferences will help the physician avoid stereotyping and making incorrect assumptions.

摘要

当患者被诊断出患有癌症时,初级保健医生通常必须传达坏消息、讨论预后并进行适当的转诊。在传达坏消息时,优先考虑患者应记住的关键点很重要。医生应评估患者的情绪状态、参与讨论的意愿以及对病情的理解程度。讨论应根据这些评估进行调整。通常,需要多次就诊。在讨论预后时,医生应敏感地意识到患者想了解多少信息存在差异。医生面临的挑战是准确传达预后而不给予虚假希望。所有参与患者护理的医生应协调他们关于预后的关键要点,以避免给患者传达相互矛盾的信息。随着疾病进展,医生必须重新评估治疗效果,并讨论患者及其家人的价值观、目标和偏好。在疾病进程早期,当患者感觉尚好时就开始关于姑息治疗的谈话很重要。有一些创新的临终关怀项目允许同时进行治愈性治疗和姑息治疗。当医生讨论从治愈性治疗向姑息治疗的转变时,应避免使用可能会让患者产生失败感或被抛弃感的措辞。医生还必须认识到文化因素可能如何影响临终讨论。对患者文化和个人偏好保持敏感将有助于医生避免刻板印象和做出错误假设。

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