Lightfoot Nancy, Strasser Roger, Maar Marion, Jacklin Kristen
Division of Human Sciences, Northern Ontario School of Medicine, Sudbury, Ontario, Canada.
Ann Epidemiol. 2008 Jun;18(6):507-14. doi: 10.1016/j.annepidem.2007.11.016. Epub 2008 Feb 8.
This article, based on our collective experience of conducting population-based and industrially based health research in partnership with northern, rural, and remote communities in Canada and Australia, will convey the related challenges and opportunities, and provide recommendations.
(1) The role(s) of northern, rural, and remote communities; (2) ethics requirements; (3) study budgets and contracts; (4) questionnaire design, response rates, and the collection of biological specimens; and (5) preparation and presentation of results, their impact, knowledge translation, and future studies were considered.
In our experience, it is important to be collaborative, respectful, and have a regular physical presence in such communities. Academic and community ethical review of the proposed research may be required. Written research proposals, contracts, and a communication plan for the results are strongly recommended. Questionnaire construction and acceptable methodology impact study success. Regular in person feedback to the communities is essential. It is important to collaboratively establish future related research priorities.
Although academic evaluation can promote the desire for the conduct of more rapid health research, successful research with northern, rural, and remote communities should build community capacity and requires time, a continuing presence, collaboration, respect, and active community involvement.
本文基于我们与加拿大和澳大利亚北部、农村及偏远社区合作开展基于人群和基于产业的健康研究的集体经验，将阐述相关挑战与机遇，并提供建议。
考虑了以下几个方面：（1）北部、农村及偏远社区的作用；（2）伦理要求；（3）研究预算与合同；（4）问卷设计、回复率及生物样本采集；（5）研究结果的准备与呈现、其影响、知识转化及未来研究。
根据我们的经验，在此类社区开展合作、保持尊重并定期实地参与非常重要。可能需要对拟开展的研究进行学术和社区伦理审查。强烈建议提交书面研究提案、合同以及研究结果的沟通计划。问卷构建和可接受的方法会影响研究的成功。定期向社区提供当面反馈至关重要。共同确定未来相关研究重点很重要。
尽管学术评估可推动开展更快速的健康研究，但与北部、农村及偏远社区成功开展研究应增强社区能力，且需要时间、持续参与、合作、尊重以及社区的积极参与。
