Jacklin Kristen, Pitawanakwat Karen, Blind Melissa, Lemieux Andrine M, Sobol Adam, Warry Wayne
Memory Keepers Medical Discovery Team, University of Minnesota Medical School - Duluth Campus, Duluth, USA.
Naandwechige-Gamig Wikwemikong Health Centre, Wikwemikong, Canada.
J Rehabil Assist Technol Eng. 2020 Sep 16;7:2055668320958327. doi: 10.1177/2055668320958327. eCollection 2020 Jan-Dec.
Aging Technologies for Indigenous Communities in Ontario (ATICON) explores the technology needs of Anishinaabe older adults in the Manitoulin region of Northern Ontario. Our program of research addresses inequitable access to supportive technologies that may allow Indigenous older adults to successfully age in place.
Using Indigenous research methodologies (IRM) and community-based participatory research (CBPR) we explored the acceptability of CareBand - a wearable location and activity monitoring device for people living with dementia using a LoRaWAN, a low-power wide-area network technology. We conducted key informant consultations and focus groups with Anishinaabe Elders, formal and informal caregivers, and health care providers (n = 29) in four geographically distinct regions.
Overall, participants agreed that CareBand would improve caregivers' peace of mind. Our results suggest refinement of the technology is necessary to address the challenges of the rural geography and winter weather; to reconsider aesthetics; address privacy and access; and to consider the unique characteristics of Anishinaabe culture and reserve life.
All three partners in this research, including the Indigenous communities, industry partner, and academic researchers, benefited from the use of CBPR and IRM. As CareBand is further developed, community input will be crucial for shaping a useful and valued device.
安大略省原住民社区的老龄化技术(ATICON)项目探索了安大略省北部马尼图林地区阿尼什纳比族老年人的技术需求。我们的研究项目致力于解决在获取支持性技术方面存在的不平等问题,这些技术有望让原住民老年人能够成功地居家养老。
我们采用原住民研究方法(IRM)和基于社区的参与性研究(CBPR),探讨了CareBand的可接受性。CareBand是一种用于痴呆症患者的可穿戴定位与活动监测设备,采用低功耗广域网技术LoRaWAN。我们在四个地理位置不同的地区,与阿尼什纳比族长者、正式和非正式护理人员以及医疗保健提供者(n = 29)进行了关键信息提供者咨询和焦点小组讨论。
总体而言,参与者一致认为CareBand会让护理人员更加安心。我们的研究结果表明,有必要对该技术进行改进,以应对农村地理环境和冬季天气带来的挑战;重新考虑其美观性;解决隐私和访问问题;并考虑阿尼什纳比族文化和保留地生活的独特特征。
本研究中的所有三个合作伙伴,包括原住民社区、行业合作伙伴和学术研究人员,都从使用CBPR和IRM中受益。随着CareBand的进一步开发,社区的意见对于塑造一个有用且有价值的设备至关重要。