Huppertz Hans-Iko, Forster Johannes, Heininger Ulrich, Roos Reinhard, Neumann Hans-Ulrich, Hammerschmidt Thomas
Children's Hospital, Bremen, Germany.
Clin Pediatr (Phila). 2008 May;47(4):363-71. doi: 10.1177/0009922807310933. Epub 2008 Feb 12.
This study analyzed parental perception of the impact of diarrhea on quality of life of their children. A standardized questionnaire was completed by 2023 parents in Germany with children with diarrhea who were younger than 2 years old. Parents stated the most worrying aspects of diarrhea. A health score was measured using a visual analogue scale (0 = worst health, 100 = best health). Clinical symptoms were quoted by 72% of parents as one of the most worrying dimensions, with duration/frequency of diarrhea and weight loss perceived most meaningful. Next were behavioral/physical symptoms (51%), with an inflamed bottom for mild disease and pain for severe cases being most meaningful. Parental concern is characterized by sympathy and anxiety for the child. The health score for the diarrheal episode was 54.6 for mild and 33.9 for severe cases. Parents perceive a high disease burden of diarrhea and clinically less meaningful aspects play a significant role.
本研究分析了父母对腹泻对其子女生活质量影响的认知。2023名德国父母填写了一份标准化问卷,他们的孩子年龄小于2岁且患有腹泻。父母们指出了腹泻最令人担忧的方面。使用视觉模拟量表(0=健康最差,100=健康最佳)测量健康评分。72%的父母提到临床症状是最令人担忧的方面之一,其中腹泻的持续时间/频率和体重减轻被认为最有意义。其次是行为/身体症状(51%),轻度疾病时臀部发炎和重度病例时疼痛被认为最有意义。父母的担忧表现为对孩子的同情和焦虑。轻度腹泻发作的健康评分为54.6,重度病例为33.9。父母认为腹泻的疾病负担很高,临床上不太有意义的方面也起着重要作用。