Lv R, Wu L, Jin L, Lu Q, Wang M, Qu Y, Liu H
Department of Neurology, Peking Union Medical College Hospital, Peking Union Medical College, Beijing, P R China.
Acta Neurol Scand. 2009 Nov;120(5):335-41. doi: 10.1111/j.1600-0404.2009.01184.x. Epub 2009 May 20.
To assess the impact of childhood epilepsy on parental quality of life (QOL) and psychological health, and to investigate possible correlations between parental QOL and background variables as well as parental anxiety and depression.
Parents having an epileptic child (n = 263) and parents having a healthy child (n = 270) were enrolled. Groups were in balance for background variables. Short-Form Health Survey (SF-36) Questionnaire, Zung Depression Scale (ZDS) and Zung Anxiety Scale (ZAS) were applied to all parents. Patients were divided into the first visit group (newly diagnosed epilepsy) and follow-up visit group.
The parents of children with epilepsy had significantly lower QOL scores in SF-36 for all subscales and higher levels of depression and anxiety by using ZDS and ZAS. The factors correlated with parental QOL were seizure control, visit status, anxiety, depression, employment, cost of epilepsy, status epilepticus, drug side effect and age of parents.
Childhood epilepsy has a severe impact on parental QOL and psychological health, and recognition of possible correlations between parental QOL and background variables will be helpful to improve parental QOL.
评估儿童癫痫对父母生活质量（QOL）和心理健康的影响，并调查父母生活质量与背景变量以及父母焦虑和抑郁之间的可能相关性。
纳入有癫痫患儿的父母（n = 263）和有健康儿童的父母（n = 270）。两组在背景变量方面保持平衡。对所有父母应用简短健康调查（SF - 36）问卷、zung抑郁量表（ZDS）和zung焦虑量表（ZAS）。患者分为首次就诊组（新诊断癫痫）和随访组。
癫痫患儿的父母在SF - 36所有子量表中的生活质量得分显著较低，并且使用ZDS和ZAS时抑郁和焦虑水平较高。与父母生活质量相关的因素有癫痫发作控制、就诊状态、焦虑、抑郁、就业、癫痫治疗费用、癫痫持续状态、药物副作用和父母年龄。
儿童癫痫对父母生活质量和心理健康有严重影响，认识到父母生活质量与背景变量之间的可能相关性将有助于提高父母的生活质量。
