Is GINA worth the wait?
作者信息
Rothstein Mark A
机构信息
Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine in Kentucky. USA.
出版信息
J Law Med Ethics. 2008 Spring;36(1):174-8. doi: 10.1111/j.1748-720X.2008.00245.x.
Abstract
摘要
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本文引用的文献
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Compelled authorizations for disclosure of health records: magnitude and implications.健康记录披露的强制授权：规模及影响
Am J Bioeth. 2007 Mar;7(3):38-45. doi: 10.1080/15265160601171887.
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Compelled disclosure of health information: protecting against the greatest potential threat to privacy.强制披露健康信息：防范对隐私的最大潜在威胁。
JAMA. 2006 Jun 28;295(24):2882-5. doi: 10.1001/jama.295.24.2882.
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Genetic exceptionalism & legislative pragmatism.基因例外论与立法实用主义。
Hastings Cent Rep. 2005 Jul-Aug;35(4):27-33.
4
What makes genetic discrimination exceptional?是什么让基因歧视与众不同？
Am J Law Med. 2003;29(1):77-116.
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The allure and peril of genetics exceptionalism: do we need special genetics legislation?基因例外论的诱惑与风险：我们是否需要专门的基因立法？
Wash Univ Law Q. 2001 Fall;79(3):669-748.
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Genetic privacy and confidentiality: why they are so hard to protect.基因隐私与保密：为何它们如此难以保护。
J Law Med Ethics. 1998 Fall;26(3):198-204, 178. doi: 10.1111/j.1748-720x.1998.tb01420.x.
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Laws restricting health insurers' use of genetic information: impact on genetic discrimination.限制健康保险公司使用基因信息的法律：对基因歧视的影响。
Am J Hum Genet. 2000 Jan;66(1):293-307. doi: 10.1086/302714.
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Genetic information and the workplace: legislative approaches and policy changes.遗传信息与工作场所：立法途径及政策变化
Science. 1997 Mar 21;275(5307):1755-7. doi: 10.1126/science.275.5307.1755.
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Drafting the Genetic Privacy Act: science, policy, and practical considerations.起草《基因隐私法》：科学、政策及实际考量
J Law Med Ethics. 1995 Winter;23(4):360-6. doi: 10.1111/j.1748-720x.1995.tb01378.x.
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