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癌症幸存者在线支持小组专业促进者所经历的益处与挑战。

Benefits and challenges experienced by professional facilitators of online support groups for cancer survivors.

作者信息

Owen Jason E, Bantum Erin O'Carroll, Golant Mitch

机构信息

Department of Psychology, Loma Linda University, CA 92350, USA.

出版信息

Psychooncology. 2009 Feb;18(2):144-55. doi: 10.1002/pon.1374.

Abstract

OBJECTIVES

The primary aim of the study was to identify specific strengths and challenges of facilitating online cancer support groups relative to face-to-face groups through the use of deductive qualitative analysis. A secondary aim was to quantitatively validate the identified strengths and challenges.

METHODS

To better understand how facilitators' roles in online support groups (OSGs) might differ from face-to-face (F2F) support groups, we compared the professional experiences of facilitators from both F2F and OSGs at The Wellness Community. Transcripts from online supervision sessions among OSG facilitators were analyzed using deductive qualitative analysis. A pool of items was developed to measure the primary themes derived from the qualitative analysis and administered to a sample of both F2F and online cancer support group facilitators.

RESULTS

Strengths and weaknesses of online support group leaders could be captured in three categories: group processes, structural elements, and facilitator roles. Positive perceptions of group processes, structural elements, and facilitator roles were significantly higher among F2F facilitators than OSG facilitators.

CONCLUSION

OSG facilitators described their online groups as helpful to participants and identified some aspects of online groups that promoted more active processing of cancer experiences among group participants. Additionally, they reported that learning how to facilitate an online group strengthened their skills in facilitating face-to-face groups. However, OSGs do appear to present significant challenges to facilitation. These challenges are discussed with particular attention given to ways in which online facilitators have developed "work-arounds" for addressing shortcomings of the internet as a medium for delivering psychosocial services.

摘要

目的

本研究的主要目的是通过演绎定性分析,确定相对于面对面小组而言,促进在线癌症支持小组的具体优势和挑战。次要目的是对所确定的优势和挑战进行定量验证。

方法

为了更好地理解在线支持小组(OSG)中促进者的角色与面对面(F2F)支持小组可能有何不同,我们比较了健康社区中F2F和OSG促进者的专业经验。使用演绎定性分析方法对OSG促进者在线监督会议的记录进行了分析。开发了一组项目来衡量从定性分析中得出的主要主题,并将其应用于F2F和在线癌症支持小组促进者的样本。

结果

在线支持小组组长的优势和劣势可分为三类:小组流程、结构要素和促进者角色。F2F促进者对小组流程、结构要素和促进者角色的积极看法明显高于OSG促进者。

结论

OSG促进者称他们的在线小组对参与者有帮助,并确定了在线小组中能促进小组成员更积极地处理癌症经历的一些方面。此外,他们报告说,学习如何促进在线小组增强了他们促进面对面小组的技能。然而,OSG确实给促进工作带来了重大挑战。本文讨论了这些挑战,并特别关注在线促进者为解决互联网作为提供心理社会服务媒介的缺点而开发的“变通方法”。

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