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一项关于环境传记展示对阿尔茨海默病患者身份认同影响的探索性案例研究。

An exploratory case study of the impact of ambient biographical displays on identity in a patient with Alzheimer's disease.

作者信息

Massimi Michael, Berry Emma, Browne Georgina, Smyth Gavin, Watson Peter, Baecker Ronald M

机构信息

Department of Computer Science, University of Toronto, Canada.

出版信息

Neuropsychol Rehabil. 2008 Oct-Dec;18(5-6):742-65. doi: 10.1080/09602010802130924.

Abstract

One of the most troubling symptoms of Alzheimer's disease is the loss of the patient's sense of identity. This loss complicates relationships, increases apathy, and generally impedes quality of life for the patient. We describe a novel in-home ambient display called Biography Theatre that cycles through music, photographs, movies, and narratives drawn from the patient's past and current life. We conducted an exploratory case study with an 84-year-old male with moderate-stage Alzheimer's disease (Mr H). The study consisted of three phases: a baseline phase, a phase wherein autobiographical materials were collected and discussed, and a phase wherein the display was deployed in the home. The patient demonstrated improvement on standardised tests of apathy and positive self-identity, but did not improve on tests of autobiographical memory, anxiety, depression, and general cognition. We also report on caregiver reactions to the intervention and how the display helped them cope with and reinterpret their loved one's condition. This work suggests that interdisciplinary work involving "off the desktop" computing technologies may be a fruitful way to provide rehabilitative benefit for individuals with Alzheimer's disease.

摘要

阿尔茨海默病最令人困扰的症状之一是患者身份认同感的丧失。这种丧失使人际关系变得复杂,加剧冷漠情绪,并普遍妨碍患者的生活质量。我们描述了一种名为“传记剧院”的新型家庭环境展示设备,它循环播放从患者过去和当前生活中选取的音乐、照片、电影和叙述内容。我们对一名患有中度阿尔茨海默病的84岁男性(H先生)进行了一项探索性案例研究。该研究包括三个阶段:基线阶段、收集并讨论自传材料的阶段,以及在家庭中部署展示设备的阶段。患者在冷漠和积极自我认同的标准化测试中表现出改善,但在自传记忆、焦虑、抑郁和一般认知测试中没有改善。我们还报告了护理人员对该干预措施的反应,以及展示设备如何帮助他们应对并重新理解亲人的病情。这项工作表明,涉及“非桌面”计算技术的跨学科工作可能是为阿尔茨海默病患者提供康复益处的有效途径。

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