Isaksson Gunilla, Josephsson Staffan, Lexell Jan, Skär Lisa
Department of Health Sciences, Luleå University of Technology, Luleå, Sweden.
Scand J Occup Ther. 2008 Dec;15(4):236-46. doi: 10.1080/11038120802194265.
The aim of this study was to gain an understanding of how men living with women with spinal cord injury (SCI) experienced and acted when they were giving and taking social support to and from their wives and other persons in their social network. Another aim was to give some possible explanations of the complex process of change that they went through. Data were collected through in-depth interviews with four men and field notes. To describe the men's subjective experiences and the process of change, a narrative approach inspired by Polkinghorne was used. The analyses resulted in one story that included the four men's experiences and action. The story showed that when the men went through a process of change, they used and needed both emotional and practical support to handle their new life situation. Furthermore, the men's experiences and action against social support changed over time. This indicated that, through narratives from spouses, professionals within rehabilitation could understand the process of change they went through after their partner's sudden injury, and support them to find strategies to handle their changed life situation. To give some possible explanations for the men's experiences and action during the process of change, the findings are discussed in relation to theories concerning adaptation and coping.
本研究的目的是了解与脊髓损伤(SCI)女性共同生活的男性在向妻子及社交网络中的其他人提供和接受社会支持时的经历和行为方式。另一个目的是对他们所经历的复杂变化过程给出一些可能的解释。通过对四名男性进行深入访谈并记录实地笔记来收集数据。为了描述这些男性的主观经历和变化过程,采用了受波尔金霍恩启发的叙事方法。分析得出了一个包含这四名男性经历和行为的故事。该故事表明,当这些男性经历变化过程时,他们既需要情感支持也需要实际支持来应对新的生活状况。此外,男性在社会支持方面的经历和行为会随着时间而改变。这表明,通过配偶的叙述,康复领域的专业人员可以了解他们在伴侣突然受伤后所经历的变化过程,并支持他们找到应对生活变化的策略。为了对男性在变化过程中的经历和行为给出一些可能的解释,将结合有关适应和应对的理论对研究结果进行讨论。