Schrama Y C, Krediet R T, de Rooy-Roggekamp M C, Arisz L
Academisch Medisch Centrum, afd. Interne Geneeskunde, Amsterdam.
Ned Tijdschr Geneeskd. 1991 Jun 29;135(26):1182-5.
To gain more insight into the quality of life of chronic haemodialysis patients, a clinimetric study was performed in 60 patients treated in a centre for active haemodialysis: Diatel, Amsterdam. The value of a number of objective and subjective test methods was also analysed. The mean age was 52 years, 57% were males and the mean time on dialysis treatment was 68 months. The objective tests were the Karnofsky index, the Active Clinical Problems Score and the Chemistry Abnormality Score. The data were obtained from the physician in charge and the medical record of the patient. The subjective information was gained during an interview based on the following tests: the Complaints score, Affect Balance Scale, Index of Well-being and Nottingham Health Profile. The physical condition of the patients depended on both age and comorbidity and was generally good; 6% of the patients had a Karnofsky score of less than or equal to 60. For the Index of Well-being patients scored lower than healthy people (p less than 0.01). The level of this index depended on age, employment and civil status. The subjective tests were significantly interrelated, the objective tests also but to a lesser extent. No correlations were found between the objective status of the patient and his emotional well-being. In conclusion, active haemodialysis patients appeared to have a fairly good quality of life. Of all tests the Affect Balance Scale, the Index of Well-being and the Complaints score were found to be the most useful, probably also for future longitudinal research.
为了更深入了解慢性血液透析患者的生活质量，我们在阿姆斯特丹的一家血液透析中心（Diatel）对60例接受维持性血液透析治疗的患者进行了一项临床测量学研究。我们还分析了一些客观和主观测试方法的价值。患者的平均年龄为52岁，57%为男性，平均透析治疗时间为68个月。客观测试包括卡诺夫斯基指数、活动性临床问题评分和化学异常评分。数据来自主管医生和患者的病历。主观信息是在基于以下测试的访谈中获得的：症状评分、情感平衡量表、幸福感指数和诺丁汉健康量表。患者的身体状况取决于年龄和合并症，总体情况良好；6%的患者卡诺夫斯基评分小于或等于60。在幸福感指数方面，患者得分低于健康人群（p<0.01）。该指数水平取决于年龄、就业状况和婚姻状况。主观测试之间显著相关，客观测试之间也有相关性，但程度较小。未发现患者的客观状况与其情绪健康之间存在相关性。总之，维持性血液透析患者的生活质量似乎相当不错。在所有测试中，情感平衡量表、幸福感指数和症状评分被认为是最有用的，可能对未来的纵向研究也很有用。
