af Sandeberg Margareta, Johansson Eva, Björk Olle, Wettergren Lena
Department of Pediatric Hematology and Oncology, Astrid Lindgrens Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.
J Pediatr Oncol Nurs. 2008 Sep-Oct;25(5):265-74. doi: 10.1177/1043454208321119. Epub 2008 Jul 22.
The aims of this study are to follow health-related quality of life (HRQOL), school attendance, and social interaction with friends in children with cancer and to explore potential relationships between HRQOL and school attendance. The study also describes self-reported reasons for not attending school and not meeting friends. During a 2-year period, all schoolchildren in Sweden starting treatment for cancer were invited to participate in the study. Participants (N = 101) were assessed 3 times during the first 5 months of treatment using 2 questionnaires: DISABKIDS Chronic Generic Module (DCGM-37) and a study-specific questionnaire. The results indicate a diminished HRQOL that remained stable over the study period, with girls rating worse HRQOL compared with boys. School attendance significantly increased over time, and approximately half of the children attended school 5 months after start of treatment. Self-reported HRQOL was positively correlated to days of school attendance. The results emphasize the importance of psychosocial care and nursing for children diagnosed with cancer, especially for girls. Research to further explore gender differences in HRQOL among children diagnosed for cancer is recommended.
本研究的目的是跟踪癌症患儿的健康相关生活质量(HRQOL)、上学出勤率以及与朋友的社交互动情况,并探讨HRQOL与上学出勤率之间的潜在关系。该研究还描述了自我报告的未上学和未与朋友见面的原因。在为期2年的时间里,瑞典所有开始接受癌症治疗的学童都被邀请参与这项研究。在治疗的前5个月,使用两份问卷对101名参与者进行了3次评估:儿童残疾通用模块问卷(DCGM - 37)和一份特定研究问卷。结果表明,HRQOL有所下降,且在研究期间保持稳定,女孩的HRQOL评分比男孩更差。随着时间的推移,上学出勤率显著提高,大约一半的儿童在开始治疗5个月后上学。自我报告的HRQOL与上学天数呈正相关。结果强调了对癌症患儿进行心理社会护理和护理的重要性,尤其是对女孩。建议开展进一步研究,以探索癌症患儿HRQOL中的性别差异。