杜氏肌营养不良男性患者的心理社会适应：一份家长报告问卷的心理测量特性及临床效用
Psychosocial adjustment in males with Duchenne muscular dystrophy: psychometric properties and clinical utility of a parent-report questionnaire.
作者信息
Hendriksen Jos G M, Poysky James T, Schrans Debby G M, Schouten Eric G W, Aldenkamp Albert P, Vles Johan S H
机构信息
Kempenhaeghe Epilepsy Centre, Department of Behavioral Sciences, Heeze, The Netherlands.
出版信息
J Pediatr Psychol. 2009 Jan-Feb;34(1):69-78. doi: 10.1093/jpepsy/jsn067. Epub 2008 Jul 22.
OBJECTIVE
The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD).
METHODS
The parents of 287 male patients with DMD aged 5-18 years completed the PARS-III and Revised Rutter Scale.
RESULTS
The alpha coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported.
CONCLUSIONS
The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.
目的
本研究的主要目的是确定个人适应与角色技能量表（PARS-III）在评估杜氏肌营养不良症（DMD）男性患者心理社会适应方面的心理测量特性和临床效用。
方法
287名年龄在5至18岁的DMD男性患者的父母完成了PARS-III和修订版拉特量表。
结果
阿尔法系数和因子分析表明该量表具有良好的信度和效度。与患有其他慢性疾病的男性相比，DMD患者的总体心理社会适应没有显著差异，且与年龄增长呈正相关。还报告了DMD人群筛查的临床临界值。
结论
PARS-III是DMD青少年心理社会适应的可靠有效指标，可用于临床筛查和研究目的。
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