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帮助患有创伤性脑损伤的成年子女:母亲们的生活世界。

Helping young adult children with traumatic brain injury: the life-world of mothers.

作者信息

Wongvatunyu Suporn, Porter Eileen J

机构信息

Ramathibodi School of Nursing, Faculty of Medicine, Ramathibodi Hospital, Mahidol University, Bangkok, Thailand.

出版信息

Qual Health Res. 2008 Aug;18(8):1062-74. doi: 10.1177/1049732308320111.

DOI:10.1177/1049732308320111
PMID:18650562
Abstract

Few scholars have described the personal-social context of the maternal experience of helping young adult children who have survived a traumatic brain injury (TBI). Viewing context as life-world, we used a descriptive phenomenological method to explore the life-world of 7 mothers whose young adult children had suffered a moderate or severe TBI at least 6 months earlier. Conducting three interviews with each mother, we discerned five features of life-world: having a child who survived a TBI as a young adult, perceiving that life has really changed, having sufficient support/feeling bereft of any help, believing that my child is still able, and believing that I can help my child. Compared to the literature, findings led to more definitive practice implications about postinjury uncertainty and maternal role change. In studies with such mothers, researchers should focus on the continuity of mothering rather than the initiation of caregiving.

摘要

很少有学者描述过母亲帮助成年子女从创伤性脑损伤(TBI)中康复这一经历的个人社会背景。我们将背景视为生活世界,采用描述性现象学方法,探索了7位母亲的生活世界,她们的成年子女至少在6个月前遭受了中度或重度创伤性脑损伤。我们对每位母亲进行了三次访谈,识别出生活世界的五个特征:成年子女从创伤性脑损伤中康复、意识到生活真的改变了、获得足够的支持/感到孤立无援、相信自己的孩子仍然有能力、相信自己能够帮助孩子。与文献相比,研究结果对损伤后不确定性和母亲角色变化产生了更明确的实践意义。在对这类母亲的研究中,研究人员应关注母爱的连续性,而非护理的开始。

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