Chisholm J
IWK Grace Health Centre, Halifax, NS B3J 3G9.
Axone. 2000 Dec;22(2):22-8.
Due to recent advances in biomedical science and technology, infants and children with complex medical needs and disabling conditions are surviving and being cared for at home more than ever before. Sociocultural influences and economic policies place mothers in the home as primary caregivers of children. Their caregiving work is largely invisible. The information provided in this paper is intended to make the work of mothering a child with disabilities more visible while alerting nurses to the impact of this trend on mothers. Strategies to minimize the negative consequences are included.
由于生物医学科学技术的最新进展，有复杂医疗需求和残疾状况的婴幼儿比以往任何时候都更多地存活下来并在家中得到照料。社会文化影响和经济政策使母亲成为家中孩子的主要照料者。她们的照料工作在很大程度上不为人所见。本文提供的信息旨在使照料残疾儿童的工作更受关注，同时提醒护士注意这一趋势对母亲的影响。文中还包括了将负面影响降至最低的策略。
