Jones Rupert C M, Wang Xu, Harding Sam, Bott Julia, Hyland Michael
Respiratory Research Unit, Peninsula Medical School, Devon, 1 Davy Road, Plymouth PL6 8BX, United Kingdom.
Respir Med. 2008 Oct;102(10):1439-45. doi: 10.1016/j.rmed.2008.04.015. Epub 2008 Aug 3.
The Lung Information Needs Questionnaire (LINQ) assesses, from the patient's perspective, their need for education. This questionnaire yields a total score and scores in six domains: disease knowledge, medicine, self-management, smoking, exercise and diet. The aim of this study was to assess the sensitivity of the LINQ to change before and after pulmonary rehabilitation (PR).
PR programmes across the UK recruited 158 patients (male=94; 59%). The participants completed the LINQ and other measures as used by the individual sites pre- and post-PR, including the Shuttle Walking Test, Chronic Respiratory Disease Questionnaire, the Hospital Anxiety and Depression Scale.
Data were analysed on 115 patients who completed data collection pre- and post-PR. The LINQ total scores, and subscales scores across all sites improved significantly with large effect sizes, except for the smoking domain as information needs about smoking were well met prior to PR. There were similar patterns of information needs at baseline and after PR in all sites.
This study shows that the LINQ is a practical tool for detecting areas where patients need education and is sensitive to change after PR. The quality of the education component of PR can be assessed using the LINQ, which could be considered as a routinely collected outcome measure in PR. The LINQ may also be a useful tool for general practitioners to assess their patients' educational needs.
肺部信息需求问卷(LINQ)从患者的角度评估他们的教育需求。该问卷得出一个总分以及六个领域的得分:疾病知识、药物、自我管理、吸烟、运动和饮食。本研究的目的是评估LINQ在肺康复(PR)前后对变化的敏感性。
英国各地的PR项目招募了158名患者(男性=94名;59%)。参与者在PR前后完成了LINQ以及各个研究点使用的其他测量,包括往返步行试验、慢性呼吸道疾病问卷、医院焦虑抑郁量表。
对115名在PR前后完成数据收集的患者进行了数据分析。除吸烟领域外,所有研究点的LINQ总分及各子量表得分均显著提高,效应量较大,因为在PR之前关于吸烟的信息需求已得到很好满足。所有研究点在基线时和PR后的信息需求模式相似。
本研究表明,LINQ是一种检测患者需要教育领域的实用工具,并且对PR后的变化敏感。PR教育部分的质量可以使用LINQ进行评估,LINQ可被视为PR中常规收集的结果指标。LINQ也可能是全科医生评估患者教育需求的有用工具。