Olsson C, Hörnell A, Ivarsson A, Sydner Y M
Department of Food and Nutrition, Epidemiology and Public Health Sciences, Umeå University, Umeå, Sweden.
J Hum Nutr Diet. 2008 Aug;21(4):359-67. doi: 10.1111/j.1365-277x.2008.00867.x.
Noncompliance with the gluten-free diet is often reported among adolescents with coeliac disease. However, knowledge is limited regarding their own perspectives and experiences of managing the disease and the prescription of a gluten-free diet. The aim of this study was to explore how adolescents with coeliac disease perceive and manage their everyday lives in relation to a gluten-free diet.
In total, 47 adolescents with coeliac disease, divided into 10 focus groups, were interviewed. In the qualitative analysis, themes emerged to illustrate and explain the adolescents' own perspectives on life with a gluten-free diet.
The probability of compliance with the gluten-free diet was comprised by insufficient knowledge of significant others, problems with the availability and sensory acceptance of gluten-free food, insufficient social support and their perceived dietary deviance. Three different approaches to the gluten-free diet emerged: compliers, occasional noncompliers, and noncompliers. Each approach, as a coping strategy, was rational in the sense that it represented the adolescents' differing views of everyday life with coeliac disease and a prescription of a gluten-free diet.
dolescents with coeliac disease experience various dilemmas related to the gluten-free diet. The study demonstrated unmet needs and implies empowerment strategies for optimum clinical outcomes.
乳糜泻青少年中经常有不遵守无麸质饮食的情况报告。然而，关于他们自己对疾病管理及无麸质饮食医嘱的看法和经历，了解有限。本研究的目的是探讨患有乳糜泻的青少年如何看待并管理与无麸质饮食相关的日常生活。
总共对47名患有乳糜泻的青少年进行了访谈，他们被分成10个焦点小组。在定性分析中，出现了一些主题，以说明和解释青少年对无麸质饮食生活的自身看法。
对重要他人了解不足、无麸质食品的可获得性和感官接受度存在问题、社会支持不足以及他们所感知到的饮食偏差，构成了遵守无麸质饮食的障碍。出现了三种不同的无麸质饮食方式：严格遵守者、偶尔不遵守者和不遵守者。每种方式作为一种应对策略，从代表青少年对乳糜泻及无麸质饮食医嘱的不同日常生活看法的意义上来说，都是合理的。
患有乳糜泻的青少年在无麸质饮食方面经历各种困境。该研究表明了未满足的需求，并暗示了实现最佳临床结果的赋权策略。
