Larkey Linda K, Gonzalez Julie A, Mar Lily E, Glantz Namino
University of Arizona, College of Medicine, Arizona Cancer Center, Scottsdale, Arizona 85258, United States.
Contemp Clin Trials. 2009 Jan;30(1):47-54. doi: 10.1016/j.cct.2008.08.003. Epub 2008 Aug 23.
Increasing minority participation in cancer research is an ethical and statistical necessity for gaining population-specific knowledge of cancer prevention, screening, and treatment. Locating and recruiting eligible and willing minority participants presents unique structural and cultural/linguistic challenges. Community Based Participatory Research provides a viable set of principles for facilitating recruitment in hard-to-recruit communities. We focus on the specific challenge of recruiting and engaging low-income and underinsured Latina women in cancer prevention education research, and present community-based strategies used to recruit women into a recently completed study in Arizona, Juntos en la Salud (Together in Health). Community representatives and promotoras' (Latino community health educators) involvement in site identification, individual recruitment, and development of strategies and materials for the interventions built engagement and trust. These strategies resulted in enrollment of an especially low-income, underinsured population. To emphasize the degree to which a particularly underserved population was recruited, we present data comparing demographic and screening profiles of enrollees to the general population of Latinos in Arizona.
增加少数族裔参与癌症研究，对于获取癌症预防、筛查及治疗方面针对特定人群的知识而言，在伦理和统计学上都是必要的。寻找并招募符合条件且愿意参与的少数族裔参与者面临着独特的结构以及文化/语言方面的挑战。基于社区的参与性研究为在难以招募的社区促进招募工作提供了一套可行的原则。我们关注在癌症预防教育研究中招募并让低收入且未参保的拉丁裔女性参与进来这一特定挑战，并介绍了用于招募女性参与亚利桑那州最近完成的一项研究“Juntos en la Salud（健康在一起）”的基于社区的策略。社区代表和社区健康促进员（拉丁裔社区健康教育工作者）参与选址、个人招募以及为干预措施制定策略和材料，建立了参与度和信任。这些策略使得一个特别低收入、未参保的人群得以入组。为了强调所招募的是一个特别服务不足的人群的程度，我们给出数据，将入组者的人口统计学和筛查特征与亚利桑那州拉丁裔总人口进行比较。
