Botello-Harbaum M, Nansel T, Haynie D L, Iannotti R J, Simons-Morton B
Eunice Kennedy Shriver National Institute of Child Health and Human Development, Division of Epidemiology and Statistics, Prevention Research Branch, Bethesda, MD 20852-7510, USA.
Child Care Health Dev. 2008 Sep;34(5):675-81. doi: 10.1111/j.1365-2214.2008.00855.x.
Improved quality of life is an important treatment goal for children and adolescents with type 1 diabetes. While previous research supports a relationship between family environment and quality of life, little research has addressed the relationship of parenting style constructs to quality of life in children with chronic disease. The present investigation assesses the relationship of parent responsiveness and demandingness with diabetes-related quality of life among children and adolescents with type 1 diabetes.
Baseline and 12-month follow-up self-report assessments were collected on a sample of 81 children with type 1 diabetes participating in an efficacy trial of a behavioural intervention to enhance adherence. The sample had a mean age of 13.3 years (SD=1.7) and duration of diabetes of 7.7 years (SD=3.7). Multiple regression analyses were conducted to determine the relationship of parent responsiveness and demandingness to diabetes-related quality of life at each time point.
After adjusting for demographic and diabetes characteristics, as well as diabetes-specific parent-child behaviours, parent responsiveness was significantly associated with baseline diabetes-related quality of life (beta=0.23; P=0.04). This relationship was sustained at 12-month follow-up (beta=0.22; P=0.04) after adjusting for baseline quality of life and treatment group assignment, suggesting that parent responsiveness is associated with improved quality of life.
Findings indicate the importance of a supportive and emotionally warm parenting style in promoting improved quality of life for children with type 1 diabetes. Appropriate parenting skills should be an element of diabetes family management health care.
提高生活质量是1型糖尿病儿童和青少年的一个重要治疗目标。虽然先前的研究支持家庭环境与生活质量之间的关系,但很少有研究探讨养育方式结构与慢性病患儿生活质量之间的关系。本研究评估了1型糖尿病儿童和青少年中父母反应性和要求性与糖尿病相关生活质量之间的关系。
对81名参与一项增强依从性的行为干预疗效试验的1型糖尿病儿童样本进行了基线和12个月随访的自我报告评估。样本的平均年龄为13.3岁(标准差=1.7),糖尿病病程为7.7年(标准差=3.7)。进行多元回归分析以确定每个时间点父母反应性和要求性与糖尿病相关生活质量之间的关系。
在调整了人口统计学和糖尿病特征以及糖尿病特异性亲子行为后,父母反应性与基线糖尿病相关生活质量显著相关(β=0.23;P=0.04)。在调整了基线生活质量和治疗组分配后,这种关系在12个月随访时仍然存在(β=0.22;P=0.04),这表明父母反应性与生活质量改善相关。
研究结果表明,支持性和情感温暖的养育方式对于促进1型糖尿病儿童生活质量的改善具有重要意义。适当的养育技能应成为糖尿病家庭管理医疗保健的一个要素。