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慢性病患儿家长与护士对家庭赋权量表内容效度的看法:一项混合方法研究

Perspectives of parents and nurses on the content validity of the Family Empowerment Scale for parents of children with a chronic condition: A mixed-methods study.

作者信息

Segers Elisabeth W, van den Hoogen Agnes, van Eerden Irene C, Hafsteinsdóttir Thora, Ketelaar Marjolijn

机构信息

Department of Children, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, The Netherlands.

Department of Neonatology, Wilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands.

出版信息

Child Care Health Dev. 2019 Jan;45(1):111-120. doi: 10.1111/cch.12629.

DOI:10.1111/cch.12629
PMID:30426545
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7380029/
Abstract

BACKGROUND

Insight into parental empowerment is important to understanding the impact of health care policy and to supporting and strengthening parents in the care of their child. The Family Empowerment Scale (FES) is a valid 24-item instrument that measures parental empowerment. It was originally developed for parents of children with emotional disabilities. It has been translated from English into Dutch. Before using the translated FES in another context, the aim of this study was to assess the content validity of the Dutch FES in the context of children with a chronic condition in a children's hospital, according to parents and nurses.

METHOD

This content validity study has a convergent, mixed-methods design. The content validity index was used to examine the relevance, according to 22 parents and 12 nurses quantitatively, on a scale and item level. The qualitative part assessed the comprehensiveness and comprehension of the FES through cognitive interviewing with eight parents and four nurses. The results of both analyses were converged to determine content validity.

RESULTS

The scale-content validity index was 0.88; three items scored < 0.78 on the item level. For 10 (of 24) items, issues were noticed about the tone and clarity of wording. Participants considered the FES to be not only an instrument of research but also an instrument that could be used to give insight into the personal degree of parental empowerment.

CONCLUSION

The content validity of the Dutch FES for parents of children with a chronic condition can be considered sufficient. Resolving some minor translation issues in some of the items is advised. The FES can be used in further research to examine the value of the FES in health care services, aiming to support the needs of parents and to increase their empowerment.

摘要

背景

深入了解父母赋权对于理解医疗保健政策的影响以及支持和加强父母照顾子女的能力非常重要。家庭赋权量表(FES)是一种有效的24项工具,用于衡量父母赋权。它最初是为患有情绪障碍儿童的父母开发的,已从英语翻译成荷兰语。在将翻译后的FES应用于其他背景之前,本研究的目的是根据父母和护士的意见,评估荷兰FES在儿童医院慢性病患儿背景下的内容效度。

方法

本内容效度研究采用了收敛性混合方法设计。内容效度指数用于从量表和项目层面定量检验22名父母和12名护士认为的相关性。定性部分通过对8名父母和4名护士进行认知访谈,评估FES的全面性和可理解性。将两种分析结果汇总以确定内容效度。

结果

量表内容效度指数为0.88;在项目层面,有三个项目得分低于0.78。对于24个项目中的10个项目,人们注意到措辞的语气和清晰度存在问题。参与者认为FES不仅是一种研究工具,而且是一种可用于洞察父母个人赋权程度的工具。

结论

荷兰FES对于慢性病患儿父母的内容效度可认为是足够的。建议解决一些项目中的一些小翻译问题。FES可用于进一步研究,以检验FES在医疗保健服务中的价值,旨在满足父母的需求并增强他们的赋权。

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本文引用的文献

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2
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J Psychiatr Ment Health Nurs. 2016 Oct;23(8):521-531. doi: 10.1111/jpm.12333. Epub 2016 Aug 8.
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Efficacy of three therapy approaches in preschool children with cerebral palsy: a randomized controlled trial.三种治疗方法对学龄前脑瘫儿童的疗效:一项随机对照试验
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Patient Empowerment and its neighbours: clarifying the boundaries and their mutual relationships.患者赋权及其相关概念:厘清界限及其相互关系。
Health Policy. 2015 Mar;119(3):384-94. doi: 10.1016/j.healthpol.2014.10.017. Epub 2014 Nov 5.
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Involving parents in managing their child's long-term condition-a concept synthesis of family-centered care and partnership-in-care.让父母参与管理孩子的长期疾病——以家庭为中心的护理和护理伙伴关系的概念综合。
J Pediatr Nurs. 2015 Jan-Feb;30(1):143-59. doi: 10.1016/j.pedn.2014.10.014. Epub 2014 Oct 24.
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Tanaffos. 2014;13(1):35-42.
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The use of "mixing" procedure of mixed methods in health services research.混合方法在卫生服务研究中的“混合”程序的使用。
Med Care. 2013 Aug;51(8):e51-7. doi: 10.1097/MLR.0b013e31824642fd.
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