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当控制加剧痛苦:一项探索香港华人父母照顾哮喘儿童经历的定性研究。

When Control Exacerbates Distress: A Qualitative Study Exploring the Experiences of Hong Kong Chinese Parents in Caring for a Child with Asthma.

机构信息

School of Nursing, The Hong Kong Polytechnic University, Hong Kong Special Administrative Region, Hong Kong, China.

The Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, 155 College Street, Suite 130, Toronto, ON M5T 1P8, Canada.

出版信息

Int J Environ Res Public Health. 2018 Jun 30;15(7):1372. doi: 10.3390/ijerph15071372.

DOI:10.3390/ijerph15071372
PMID:29966322
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6068617/
Abstract

: Many parents have difficulty managing childhood asthma. In Hong Kong (HK), while medication is the primary form of treatment, traditional Chinese medicine is another favored option. In addition, HK follows a dual-track healthcare system, which may pose unique experiences for Chinese parents in managing childhood asthma. This qualitative descriptive study aimed to explore the experiences of HK Chinese parents in caring for their children with asthma. : Fourteen HK Chinese mothers of children (aged 3⁻10) suffering from asthma were purposively sampled to participate in individual, semi-structured interviews. A realist approach following conventional content analysis was used to interpret the interviews. : The mothers expressed feelings of uncertainty, fear of asthma crises, and searched for ways to cope. As long as their child’s asthma symptoms recurred, the mothers’ distress continued. Their distress was sometimes exacerbated by self-doubt and worries over whether they would receive adequate support from their family and healthcare professionals. : Helping parents to understand their limits may help them be more open to varied aspects of their caregiving experiences, and thus to cope better. Psychological interventions together with traditional educational training may help to alleviate the psychological difficulties of parents.

摘要

许多父母在管理儿童哮喘方面都有困难。在香港(HK),尽管药物治疗是主要的治疗形式,但中医也是另一种受欢迎的选择。此外,香港实行双轨制医疗体系,这可能会给中国父母管理儿童哮喘带来独特的体验。本定性描述性研究旨在探讨香港华人父母照顾哮喘患儿的经验。

研究人员采用目的抽样法,选取了 14 位患有哮喘的 3-10 岁儿童的香港华裔母亲作为研究对象,让其参与个人半结构化访谈。采用传统内容分析法的现实主义方法对访谈进行解释。

母亲们表达了不确定感、对哮喘发作的恐惧,并寻找应对方法。只要孩子的哮喘症状复发,母亲们就会持续感到痛苦。她们的痛苦有时会因自我怀疑和担心自己是否会得到家人和医疗保健专业人员的充分支持而加剧。

帮助父母了解自己的局限性可能有助于他们更开放地接受照顾孩子的不同方面,从而更好地应对。心理干预加上传统的教育培训可能有助于减轻父母的心理困难。

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本文引用的文献

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Understanding Hong Kong Chinese Families' Experiences of an Autism/ASD Diagnosis.了解香港华人家族对自闭症/自闭症谱系障碍诊断的经历。
J Autism Dev Disord. 2016 Apr;46(4):1164-83. doi: 10.1007/s10803-015-2650-z.
3
The Stress of Caring for Children With Asthma: A Qualitative Study of Primary Caregivers.照顾哮喘患儿的压力:对主要照顾者的定性研究
J Nurs Res. 2015 Dec;23(4):298-307. doi: 10.1097/JNR.0000000000000083.
4
Fathers and Asthma Care: Paternal Involvement, Beliefs, and Management Skills.父亲与哮喘护理:父亲的参与、观念及管理技能
J Pediatr Psychol. 2015 Sep;40(8):768-80. doi: 10.1093/jpepsy/jsv035. Epub 2015 Apr 28.
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Systematic Review and Meta-Analysis of Anxious and Depressive Symptoms in Caregivers of Children With Asthma.哮喘患儿照料者焦虑和抑郁症状的系统评价与Meta分析
J Pediatr Psychol. 2015 Aug;40(7):623-32. doi: 10.1093/jpepsy/jsv012. Epub 2015 Mar 30.
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Parental stress and the onset and course of childhood asthma.父母压力与儿童哮喘的发病和病程。
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