• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

患有囊性纤维化的青少年和成年人的生活满意度:伴侣关系和性别的影响。

Life satisfaction of adolescents and adults with cystic fibrosis: impact of partnership and gender.

作者信息

Besier Tanja, Schmitz Tim G, Goldbeck Lutz

机构信息

University Hospital Ulm, Department of Child and Adolescent Psychiatry/Psychotherapy, Ulm, Germany.

出版信息

J Cyst Fibros. 2009 Mar;8(2):104-9. doi: 10.1016/j.jcf.2008.10.001. Epub 2008 Nov 12.

DOI:10.1016/j.jcf.2008.10.001
PMID:19008159
Abstract

BACKGROUND

This is the first study to assess the impact of gender and partnership on life satisfaction in adolescents and adults with CF, using a model combining subjective importance and satisfaction ratings.

METHODS

Life satisfaction of 243 CF patients (16-58 years, M=29.6, SD=7.4, 46.9% male) was assessed with the Questions on Life Satisfaction (FLZ(M)). The effects of gender and partnership on life satisfaction were calculated.

RESULTS

Significantly less males than females reported living with a partner (chi(2)=16.5, p<001). Gender only had a significant effect on health-related life satisfaction, with females reporting worse life satisfaction. Partnership had small to large effects on general, health-related and CF-specific life satisfaction (eta(2)=.049-.144). Participants with partners always reported higher life satisfaction than those without partner. However, no significant interaction effect of partnership and gender could be shown.

CONCLUSIONS

Having a partner is associated with higher life satisfaction, regardless of the patient's gender and might have beneficial effects on medical outcomes.

摘要

背景

这是第一项使用结合主观重要性和满意度评分的模型来评估性别和伴侣关系对青少年及成年囊性纤维化(CF)患者生活满意度影响的研究。

方法

采用生活满意度问卷(FLZ(M))对243例CF患者(年龄16 - 58岁,平均年龄M = 29.6岁,标准差SD = 7.4,男性占46.9%)的生活满意度进行评估。计算性别和伴侣关系对生活满意度的影响。

结果

报告与伴侣同住的男性显著少于女性(卡方值= 16.5,p < 0.001)。性别仅对与健康相关的生活满意度有显著影响,女性报告的生活满意度较低。伴侣关系对总体、与健康相关及CF特异性生活满意度有小到中等程度的影响(偏 eta 平方= 0.049 - 0.144)。有伴侣的参与者报告的生活满意度始终高于没有伴侣的参与者。然而,未显示出伴侣关系和性别之间的显著交互作用。

结论

无论患者性别如何,拥有伴侣都与更高的生活满意度相关,并且可能对医疗结果产生有益影响。

相似文献

1
Life satisfaction of adolescents and adults with cystic fibrosis: impact of partnership and gender.患有囊性纤维化的青少年和成年人的生活满意度:伴侣关系和性别的影响。
J Cyst Fibros. 2009 Mar;8(2):104-9. doi: 10.1016/j.jcf.2008.10.001. Epub 2008 Nov 12.
2
[Quality of life with cystic fibrosis--aspects of age and gender].[囊性纤维化患者的生活质量——年龄与性别的影响因素]
Klin Padiatr. 2006 Jan-Feb;218(1):7-12. doi: 10.1055/s-2004-832485.
3
[Life satisfaction and subjective importance of life domains in schizophrenia patients: the role of partnership and parenthood].[精神分裂症患者的生活满意度及生活领域的主观重要性:伴侣关系与为人父母的角色]
Fortschr Neurol Psychiatr. 2010 Mar;78(3):147-53. doi: 10.1055/s-0028-1110026. Epub 2010 Feb 3.
4
The effects of cystic fibrosis on couples: marital satisfaction, emotions, and coping strategies.囊性纤维化对夫妻的影响:婚姻满意度、情绪及应对策略。
Scand J Psychol. 2008 Dec;49(6):583-9. doi: 10.1111/j.1467-9450.2008.00683.x. Epub 2008 Sep 22.
5
Gender differences in treatment adherence among youth with cystic fibrosis: development of a new questionnaire.囊性纤维化青少年治疗依从性的性别差异:一种新问卷的编制
J Cyst Fibros. 2008 Mar;7(2):154-64. doi: 10.1016/j.jcf.2007.07.008. Epub 2007 Aug 24.
6
Psychological and family functioning and quality of life in adolescents with cystic fibrosis.患有囊性纤维化的青少年的心理、家庭功能及生活质量
J Cyst Fibros. 2005 May;4(2):135-44. doi: 10.1016/j.jcf.2005.02.004.
7
Validation of the Danish version of the revised cystic fibrosis quality of life questionnaire in adolescents and adults (CFQ-R14+).丹麦版修订的青少年及成人囊性纤维化生活质量问卷(CFQ-R14+)的验证
J Cyst Fibros. 2008 Nov;7(6):531-6. doi: 10.1016/j.jcf.2008.06.006. Epub 2008 Aug 9.
8
Impacts of missing upper anterior teeth on daily living.上颌前牙缺失对日常生活的影响。
Int Dent J. 2009 Jun;59(3):127-32.
9
Monitoring quality of life in outpatients with cystic fibrosis: feasibility and longitudinal results.监测囊性纤维化门诊患者的生活质量:可行性及纵向研究结果。
J Cyst Fibros. 2007 May;6(3):171-8. doi: 10.1016/j.jcf.2006.06.005. Epub 2006 Jul 31.
10
Acceptance and well-being in adolescents and young adults with cystic fibrosis: a prospective study.囊性纤维化青少年和年轻成人的接受度和幸福感:一项前瞻性研究。
J Pediatr Psychol. 2011 May;36(4):476-87. doi: 10.1093/jpepsy/jsq111. Epub 2011 Jan 5.

引用本文的文献

1
Sex disparities in cystic fibrosis in the era of highly effective modulator treatment.高效调节剂治疗时代囊性纤维化中的性别差异。
BMC Pulm Med. 2025 May 2;25(1):212. doi: 10.1186/s12890-025-03621-0.
2
Health-Related Quality of Life in Adults with Cystic Fibrosis: Familial, Occupational, Social, and Mental Health Predictors.成年囊性纤维化患者的健康相关生活质量:家庭、职业、社会和心理健康预测因素
Healthcare (Basel). 2022 Jul 21;10(7):1351. doi: 10.3390/healthcare10071351.
3
Lived experiences of individuals with cystic fibrosis on CFTR-modulators.
囊性纤维化跨膜电导调节因子调节剂治疗患者的生活体验
BMC Pulm Med. 2022 Jan 21;22(1):42. doi: 10.1186/s12890-022-01825-2.
4
Just breathe: a review of sex and gender in chronic lung disease.只需呼吸:慢性肺部疾病中的性别差异综述。
Eur Respir Rev. 2022 Jan 12;31(163). doi: 10.1183/16000617.0111-2021. Print 2022 Mar 31.
5
Current characteristics, challenges and coping strategies of young people with cystic fibrosis as they transition to adulthood.患有囊性纤维化的年轻人向成年期过渡时的当前特征、挑战及应对策略。
Clin Med (Lond). 2017 Apr;17(2):121-125. doi: 10.7861/clinmedicine.17-2-121.
6
Factors related to changes in the quality of life among Polish adolescents and adults with cystic fibrosis over a 1-year period.波兰囊性纤维化青少年和成年人在1年期间生活质量变化的相关因素。
Patient Prefer Adherence. 2015 Dec 15;9:1763-70. doi: 10.2147/PPA.S88385. eCollection 2015.
7
Growing up with cystic fibrosis: achievement, life satisfaction, and mental health.囊性纤维化患者的成长经历:成就、生活满意度和心理健康。
Qual Life Res. 2012 Dec;21(10):1829-35. doi: 10.1007/s11136-011-0096-0. Epub 2012 Jan 4.
8
Effects of gender and age at diagnosis on disease progression in long-term survivors of cystic fibrosis.性别和诊断时年龄对囊性纤维化长期生存者疾病进展的影响。
Am J Respir Crit Care Med. 2010 Sep 1;182(5):614-26. doi: 10.1164/rccm.201001-0092OC. Epub 2010 May 6.