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关于两性畸形疾病管理的共识声明。

Consensus statement on management of intersex disorders.

作者信息

Hughes I A, Houk C, Ahmed S F, Lee P A

机构信息

Department of Paediatrics, University of Cambridge, Addenbrooke's Hospital, Cambridge CB2 2QQ, UK.

出版信息

J Pediatr Urol. 2006 Jun;2(3):148-62. doi: 10.1016/j.jpurol.2006.03.004. Epub 2006 May 23.

Abstract

The birth of an intersex child prompts a long-term management strategy that involves a myriad of professionals working with the family. There has been progress in diagnosis, surgical techniques, understanding psychosocial issues and in recognizing and accepting the place of patient advocacy. The Lawson Wilkins Paediatric Endocrine Society (LWPES) and the European Society for Paediatric Endocrinology (ESPE) considered it timely to review the management of intersex disorders from a broad perspective, to review data on longer term outcome and to formulate proposals for future studies. The methodology comprised establishing a number of working groups whose membership was drawn from 50 international experts in the field. The groups prepared prior written responses to a defined set of questions resulting from an evidence based review of the literature. At a subsequent gathering of participants, a framework for a consensus document was agreed. This paper constitutes its final form.

摘要

两性畸形患儿的出生促使形成一种长期管理策略,这涉及众多专业人员与家庭共同协作。在诊断、手术技术、对心理社会问题的理解以及认识和接受患者维权方面都取得了进展。劳森·威尔金斯儿科内分泌学会(LWPES)和欧洲儿科内分泌学会(ESPE)认为,从广泛的角度审视两性畸形疾病的管理、回顾长期结果数据并为未来研究制定建议恰逢其时。方法包括设立若干工作组,其成员来自该领域的50位国际专家。这些小组事先针对基于循证文献综述得出的一组特定问题撰写了书面答复。在随后的参与者聚会上,商定了一份共识文件的框架。本文即其最终形式。

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