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血友病年轻患者的口腔及总体健康相关生活质量

Oral and general health-related quality of life among young patients with haemophilia.

作者信息

Alpkiliç Baskirt E, Ak G, Zulfikar B

机构信息

Department of Oral Medicine and Oral Surgery, Faculty of Dentistry, Istanbul University, Turkey.

出版信息

Haemophilia. 2009 Jan;15(1):193-8. doi: 10.1111/j.1365-2516.2008.01919.x. Epub 2008 Oct 23.

DOI:10.1111/j.1365-2516.2008.01919.x
PMID:18976252
Abstract

The clinical diagnosis of dental diseases may indicate their cause and prognosis, however it gives little information about resulting levels of impairment from the patients' perspective. In this study, we aimed to investigate oral and general health-related quality of life (OHRQoL-HRQoL) in patients with haemophilia; and to test whether haemophiliacs would have worse or better OHRQoL compared with the general population. Data were collected from haemophiliacs (age range 14-35; mean 23 +/- 6.58, n = 71) and age/sex-matched controls (age range 14-35; mean 21.00 +/- 6.45, n = 60) through face-to-face interviews including nine questions and using oral health impact profile (OHIP)-14, oral health-related quality of life-UK (OHQoL-UK), short-form general measure of health (SF)-36 to measure self-rating oral health status, perceived dental treatment needs, tooth brushing frequencies, OHRQoL-HRQoL. In the field of self-rating oral health status, perceived dental treatment needs, tooth brushing frequencies and OHIP, OHQoL-UK, SF-36 scores - except the subscales including vitality, role emotional and mental health - the control group is in better conditions compared with the haemophilia group. At the same time, both the two groups are in good conditions in dental attendance, vitality, role emotional and mental health. Life quality is related with the perceived discrepancy between the reality of what a person has and the concept of what that person wants, needs or expects. In order to eliminate the dilemma in the field of health, we should facilitate the haemophiliacs' lives by serving the health care in a multidisciplinary view.

摘要

牙科疾病的临床诊断可以表明其病因和预后,然而,从患者的角度来看,它几乎没有提供关于由此导致的损伤程度的信息。在本研究中,我们旨在调查血友病患者的口腔和总体健康相关生活质量(OHRQoL-HRQoL);并测试血友病患者与普通人群相比,其OHRQoL是更差还是更好。通过面对面访谈收集了血友病患者(年龄范围14-35岁;平均23±6.58岁,n = 71)和年龄/性别匹配的对照组(年龄范围14-35岁;平均21.00±6.45岁,n = 60)的数据,访谈包括九个问题,并使用口腔健康影响程度量表(OHIP)-14、英国口腔健康相关生活质量量表(OHQoL-UK)、健康简表(SF)-36来测量自我评定的口腔健康状况、感知到的牙科治疗需求、刷牙频率、OHRQoL-HRQoL。在自我评定的口腔健康状况、感知到的牙科治疗需求、刷牙频率以及OHIP、OHQoL-UK、SF-36评分方面——除了包括活力、角色情感和心理健康的分量表外——与血友病组相比,对照组的情况更好。同时,两组在就诊、活力、角色情感和心理健康方面状况良好。生活质量与一个人实际拥有的和其想要、需要或期望的概念之间的感知差异有关。为了消除健康领域的困境,我们应该从多学科角度提供医疗服务,以改善血友病患者的生活。

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