Csikos Agnes, Albanese Terry, Busa Csilla, Nagy Lajos, Radwany Steven
Department of Family Medicine, Faculty of Medicine, University of Pecs, Pecs, Hungary.
J Palliat Med. 2008 Oct;11(8):1083-7. doi: 10.1089/jpm.2008.0094.
Death and dying are taboo topics in Hungary. The care of the dying, the adequate relief of their symptoms, and the psychosocial and spiritual support of both patients and their relatives are not yet well addressed. As a preliminary study, we obtained information about the feelings and thoughts of Hungarian patients on death and dying, and about their expectations for end-of-life care.
A questionnaire was mailed to a convenience sample of 29 adult primary care offices where a total of 845 unselected patients completed the questionnaire.
Only 19% of respondents would prefer to die in a hospital; while 69% of respondents would like to receive end of life care in their home. Respondents' greatest fear was to lose their autonomy and be dependent on their caregivers (55%). The second most noted concern was fear of pain and suffering (38%).
The majority of Hungarian patients visiting their primary care physician's office prefer to receive end-of-life care in their own home. This mirrors findings in other European countries. It would appear that hospice and palliative care approaches would be acceptable to the Hungarian public if they were to be broadly developed.
在匈牙利，死亡和临终是禁忌话题。临终关怀、症状的充分缓解以及对患者及其亲属的心理社会和精神支持尚未得到妥善解决。作为一项初步研究，我们了解了匈牙利患者对死亡和临终的感受与想法，以及他们对临终关怀的期望。
向29个成人初级保健机构的便利样本邮寄了一份问卷，共有845名未经挑选的患者完成了问卷。
只有19%的受访者更愿意在医院去世；而69%的受访者希望在家中接受临终关怀。受访者最担心的是失去自主权并依赖照顾者（55%）。第二大担忧是害怕疼痛和痛苦（38%）。
大多数前往初级保健医生办公室就诊的匈牙利患者更愿意在自己家中接受临终关怀。这与其他欧洲国家的研究结果一致。如果广泛开展临终关怀和姑息治疗方法，似乎会被匈牙利公众所接受。
