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关于终末期医疗护理的医生信念和态度:匈牙利和美国部分地区的对比。

Physicians' beliefs and attitudes about end-of-life care: a comparison of selected regions in Hungary and the United States.

机构信息

Institute of Family Medicine, University of Pécs, Pécs, Hungary.

出版信息

J Pain Symptom Manage. 2010 Jan;39(1):76-87. doi: 10.1016/j.jpainsymman.2009.05.019. Epub 2009 Nov 4.

Abstract

CONTEXT

Unlike primary care physicians in the U.S., it is only recently that Hungarian primary care physicians have had the educational resources for providing end-of-life care and the availability of hospice services as part of the Hungarian health care system.

OBJECTIVES

The aim of this study was to assess, compare, and contrast beliefs and practices of end-of-life care held by primary care physicians practicing in selected regions of the United States and Hungary.

METHODS

A 22-item questionnaire, written in English, translated to Hungarian, and pilot tested in both countries, was mailed to 339 Hungarian and 330 U.S. physicians, with response rates of 54% and 48%, respectively. Descriptive and bivariate analyses were conducted to compare the samples.

RESULTS

Over half of U.S. physicians indicated they were quite knowledgeable about hospice care and rated currently available services for the terminally ill as exceptionally good, compared to less than 10% of Hungarian physicians. The physicians' differing beliefs that discussing a terminal prognosis fosters a sense of hopelessness is consistent with disclosure beliefs and practices. The majority of U.S. physicians believe it is the patients' right to know and always tell them when the diagnosis is terminal. Hungarian physicians (44%) believe that the patient's right to know is balanced by the physician's judgment of the patient's best interest, and an additional 40% disclose only if asked.

CONCLUSION

These results illustrate some of the important differences in physicians' beliefs about the care of terminally ill patients between the two countries and can be used to guide medical education and practice.

摘要

背景

与美国的初级保健医生不同,最近匈牙利的初级保健医生才获得了提供临终关怀的教育资源,并且匈牙利医疗体系中也提供了临终关怀服务。

目的

本研究旨在评估、比较和对比在美国和匈牙利选定地区执业的初级保健医生对临终关怀的信念和实践。

方法

一份 22 项的问卷以英文编写,翻译成匈牙利文,并在两国进行了试点测试,共向 339 名匈牙利医生和 330 名美国医生邮寄了问卷,回复率分别为 54%和 48%。采用描述性和双变量分析对样本进行了比较。

结果

超过一半的美国医生表示,他们对临终关怀非常了解,并对目前为绝症患者提供的服务评价极高,而只有不到 10%的匈牙利医生有这种看法。医生们认为讨论终期预后会助长绝望感,这种信念与披露信念和实践一致。大多数美国医生认为,患者有权了解病情,并且应在诊断为绝症时告知他们。匈牙利医生(44%)认为,患者有权了解与医生判断患者最佳利益之间存在平衡,如果患者询问,医生可以进行披露。

结论

这些结果说明了两国医生在对待绝症患者护理方面的信念存在一些重要差异,可以用于指导医学教育和实践。

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