Protudjer Jennifer L P, Kozyrskyj Anita L, Becker Allan B, Marchessault Gail
Department of Applied Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada.
Qual Health Res. 2009 Jan;19(1):94-104. doi: 10.1177/1049732308327348. Epub 2008 Nov 7.
Despite understanding the physiologic effects of childhood asthma, less is known about how children perceive living with asthma. We undertook semistructured, in-depth interviews with 11 boys and 11 girls (all aged 11) drawn from a larger ongoing asthma study of Manitoba children born in 1995. All had asthma, as diagnosed by a pediatric allergist. We sought to further understand how children perceive asthma. Children spoke of feeling different and commonly used words such as "pain" and "hurt." We have categorized children's strategies to normalize their lives as (a) minimizing the health impact, (b) stressing normality, (c) emphasizing abilities, (d) making adaptations in daily living, and, (e) managing symptoms with medications. These findings suggest that aspects of other researchers' work regarding normalization efforts of children with various chronic diseases also apply in a chronic condition that is less obvious.
尽管了解儿童哮喘的生理影响，但对于儿童如何看待患有哮喘的生活却知之甚少。我们对11名男孩和11名女孩（均为11岁）进行了半结构化的深度访谈，这些孩子来自一项正在进行的关于1995年出生的曼尼托巴省儿童的更大规模哮喘研究。所有孩子都患有哮喘，由儿科过敏症专科医生诊断。我们试图进一步了解儿童如何看待哮喘。孩子们表示感觉自己与众不同，常用“疼痛”和“受伤”等词。我们将孩子们使生活正常化的策略归类为：（a）将健康影响最小化；（b）强调正常性；（c）强调自身能力；（d）在日常生活中做出调整；以及（e）使用药物控制症状。这些发现表明，其他研究人员关于各种慢性病患儿正常化努力的研究成果，在一种不太明显的慢性病中也同样适用。
