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1
Identifiability of DNA data: the need for consistent federal policy.
Am J Bioeth. 2008 Oct;8(10):75-6. doi: 10.1080/15265160802478511.
2
Genomic anonymity: have we already lost it?
Am J Bioeth. 2008 Oct;8(10):71-4. doi: 10.1080/15265160802478560.
3
What does it mean to be identifiable?
Am J Bioeth. 2008 Oct;8(10):W7-8. doi: 10.1080/15265160802519538.
4
Ethics as an act of listening.
Am J Bioeth. 2008 Oct;8(10):80-1. doi: 10.1080/15265160802521013.
5
Patients' views on identifiability of samples and informed consent for genetic research.
Am J Bioeth. 2008 Oct;8(10):62-70. doi: 10.1080/15265160802478404.
6
8
Safeguarding human genetic privacy.
Judicature. 2003 Mar-Apr;86(5):224.
10
Universal and uniform protections of human subjects in research.
Am J Bioeth. 2008 Nov;8(11):3-5. doi: 10.1080/15265160802513077.

引用本文的文献

1
A systematic literature review of individuals' perspectives on privacy and genetic information in the United States.
PLoS One. 2018 Oct 31;13(10):e0204417. doi: 10.1371/journal.pone.0204417. eCollection 2018.
2
Human embryos and eggs: from long-term storage to biobanking.
Monash Bioeth Rev. 2015 Dec;33(4):340-59. doi: 10.1007/s40592-015-0045-8.
3
Gay and Bisexual Men's Perceptions of the Donation and Use of Human Biological Samples for Research: A Qualitative Study.
PLoS One. 2015 Jun 8;10(6):e0129924. doi: 10.1371/journal.pone.0129924. eCollection 2015.
4
IRB practices and policies regarding the secondary research use of biospecimens.
BMC Med Ethics. 2015 May 8;16:32. doi: 10.1186/s12910-015-0020-1.
6
Identifying genetic relatives without compromising privacy.
Genome Res. 2014 Apr;24(4):664-72. doi: 10.1101/gr.153346.112. Epub 2014 Mar 10.
7
Biobanking, consent, and certificates of confidentiality: does the ANPRM muddy the water?
J Law Med Ethics. 2013 Summer;41(2):440-53. doi: 10.1111/jlme.12054.
8
How anonymous is 'anonymous'? Some suggestions towards a coherent universal coding system for genetic samples.
J Med Ethics. 2012 May;38(5):304-9. doi: 10.1136/medethics-2011-100181. Epub 2012 Feb 16.
10
Public perspectives regarding data-sharing practices in genomics research.
Public Health Genomics. 2011;14(6):319-24. doi: 10.1159/000324705. Epub 2011 Mar 24.

本文引用的文献

1
Patients' views on identifiability of samples and informed consent for genetic research.
Am J Bioeth. 2008 Oct;8(10):62-70. doi: 10.1080/15265160802478404.
3
Ethics. Identifiability in genomic research.
Science. 2007 Aug 3;317(5838):600-2. doi: 10.1126/science.1147699.
4
Meeting the growing demands of genetic research.
J Law Med Ethics. 2006 Winter;34(4):809-12. doi: 10.1111/j.1748-720X.2006.00100.x.
5
Genetics. No longer de-identified.
Science. 2006 Apr 21;312(5772):370-1. doi: 10.1126/science.1125339.
6
Genetics. Genomic research and human subject privacy.
Science. 2004 Jul 9;305(5681):183. doi: 10.1126/science.1095019.

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