Wood Kate, Lambert Helen
Thomas Coram Research Unit, Institute of Education, University of London.
Med Anthropol Q. 2008 Sep;22(3):213-33. doi: 10.1111/j.1548-1387.2008.00023.x.
In this ethnographic article, we explore the character of local discourse about AIDS in an affected township community in South Africa, describing the "indirection" that characterized communication about suspected cases of AIDS. Through a case study of one affected family, the article first explores the diverse ways in which people came to "know" that specific cases of illness were AIDS related, and how this "knowledge" was communicated. We consider why communication was indirect and coded, arguing that this reflected nota "denial" of its presence in this community but, rather, a complex group of overlapping concerns far from unique to AIDS: first, a normative injunction on naming potentially fatal conditions; second, an interest in pursuing different therapeutic options and the need to maintain hope of recovery; and third, a wish to avoid the "disrespect" entailed in referring directly to the nature of the problem in a context where, discursively, stigma was still present. The coded and indirect character of HIV/AIDS-related talk underlines the importance of ethnographic inquiry in understanding community responses to this epidemic, demonstrating that the subtleties entailed by verbal silence and elision should not be interpreted naively as collective "denial" but rather be grounded within existing patterns of responses to dangerous sickness.
在这篇民族志文章中,我们探究了南非一个受艾滋病影响的乡镇社区中关于艾滋病的本土话语特点,描述了有关疑似艾滋病病例交流中呈现出的“间接性”。通过对一个受影响家庭的案例研究,本文首先探究了人们逐渐“知晓”特定疾病病例与艾滋病相关的多种方式,以及这种“知晓”是如何传播的。我们思考了交流为何是间接且隐晦的,认为这并非反映出对艾滋病在该社区存在的“否认”,而是反映出一系列复杂且相互重叠的担忧,这些担忧远非艾滋病所独有:其一,对命名潜在致命疾病存在规范性禁令;其二,对寻求不同治疗方案的兴趣以及维持康复希望的需求;其三,在一个仍存在话语污名的背景下,希望避免直接提及问题本质所带来的“不尊重”。与艾滋病毒/艾滋病相关谈话的隐晦和间接特点凸显了民族志探究在理解社区对这一流行病反应方面的重要性,表明言语上的沉默和省略所蕴含的微妙之处不应被天真地解读为集体“否认”,而应基于对危险疾病的现有反应模式。