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晚期慢性肾脏病(5期)不适合透析治疗患者的姑息治疗

[Palliative care in patients with advanced chronic kidney disease (stage 5) not amenable to dialysis treatment].

作者信息

Tejedor A, de Las Cuevas Bou X

机构信息

Hospital Gregorio Marañón, Madrid.

出版信息

Nefrologia. 2008;28 Suppl 3:129-36.

PMID:19018751
Abstract
  • Palliative care is not "the absence of KRT", but an alternative to it in very selected cases. Both the patient and the family should have the absolute certainty that noninclusion or <> for KRT does not imply a reduction in the medical care received by the patient or a survival of worse quality. - The two main causes for deselection are the patient's refusal to enter dialysis and the presence of severe associated comorbidity. - Each center should assess these figures, their own estimates, the availability of resources and their organizational capacity to determine whether to initiate or not a specific program of palliative care in end-stage (PCU-ACKD). - Follow-up will be made both in the hospital and at home. Home care of the end-stage uremic patient will require involvement of the family and especially of a primary caregiver to support the process, centralize patient care and handle relations with the care team. Appropriate information and training of the caregiver will allow patient care to be carried out in the patient's usual home environment and reduce the anxiety and overload of the person taking on the main responsibility for care.
摘要
  • 姑息治疗并非“不进行肾脏替代治疗(KRT)”,而是在非常特定的情况下作为其替代方案。患者及其家属都应绝对确信,不纳入或“排除”KRT并不意味着患者接受的医疗护理减少或生存质量变差。

  • 排除KRT的两个主要原因是患者拒绝接受透析以及存在严重的相关合并症。

  • 每个中心都应评估这些数据、自身的估计、资源可用性及其组织能力,以确定是否启动终末期(PCU - ACKD)特定的姑息治疗项目。

  • 随访将在医院和家中进行。终末期尿毒症患者的家庭护理需要家庭尤其是主要照料者的参与,以支持整个过程、集中患者护理并处理与护理团队的关系。对照料者进行适当的信息告知和培训,将使患者护理能够在患者通常的家庭环境中进行,并减轻主要负责护理的人员的焦虑和负担。

相似文献

1
[Palliative care in patients with advanced chronic kidney disease (stage 5) not amenable to dialysis treatment].晚期慢性肾脏病(5期)不适合透析治疗患者的姑息治疗
Nefrologia. 2008;28 Suppl 3:129-36.
2
[Patients in pre-dialysis: decision taking and free choice of treatment].[透析前患者:治疗决策与自由选择]
Nefrologia. 2008;28 Suppl 3:119-22.
3
[Advanced chronic kidney disease unit. Concept of a multidisciplinary unit. Objectives of the CKD unit].
Nefrologia. 2008;28 Suppl 3:49-52.
4
CE: continuing education article. Integration of palliative care for patients with stage 5 chronic kidney disease.继续教育文章。终末期慢性肾病患者姑息治疗的整合
J Ren Care. 2010 Dec;36(4):218-26. doi: 10.1111/j.1755-6686.2010.00204.x.
5
[Key ethic discussions in hospice/palliative care].[临终关怀/姑息治疗中的关键伦理讨论]
Acta Med Croatica. 2008 Dec;62(5):447-54.
6
[Nursing in the advanced chronic kidney disease (ACKD) unit].[晚期慢性肾脏病(ACKD)病房的护理]
Nefrologia. 2008;28 Suppl 3:53-6.
7
Palliative care in end-stage renal disease: illness trajectories, communication, and hospice use.终末期肾病的姑息治疗:疾病轨迹、沟通与临终关怀的使用
Adv Chronic Kidney Dis. 2007 Oct;14(4):402-8. doi: 10.1053/j.ackd.2007.07.002.
8
Symptom burden and quality of life in end-stage renal disease: a study of 179 patients on dialysis and palliative care.终末期肾病患者的症状负担与生活质量:一项针对179例接受透析及姑息治疗患者的研究。
Palliat Med. 2009 Mar;23(2):111-9. doi: 10.1177/0269216308101099. Epub 2009 Jan 19.
9
Next-of-kin caregivers in palliative home care--from control to loss of control.姑息性家庭护理中的亲属照料者——从掌控到失控
J Adv Nurs. 2008 Dec;64(6):578-86. doi: 10.1111/j.1365-2648.2008.04819.x.
10
[Bioethics and caregiving: a critical interaction in patient care today].
G Ital Med Lav Ergon. 2008 Jul-Sep;30(3 Suppl B):B10-4.

引用本文的文献

1
The needs of families who care for individuals with kidney failure on comprehensive conservative care: A qualitative systematic review.需要接受全面保守治疗的肾衰竭患者家庭:一项定性系统评价。
J Ren Care. 2022 Dec;48(4):230-242. doi: 10.1111/jorc.12415. Epub 2022 Feb 28.
2
Home Palliative Care for Patients with Advanced Chronic Kidney Disease: Preliminary Results.晚期慢性肾病患者的居家姑息治疗:初步结果
Healthcare (Basel). 2015 Oct 28;3(4):1064-74. doi: 10.3390/healthcare3041064.
3
[Consensus document for the detection and management of chronic kidney disease].
[慢性肾脏病检测与管理共识文件]
Aten Primaria. 2014 Nov;46(9):501-19. doi: 10.1016/j.aprim.2014.09.002. Epub 2014 Oct 5.